MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
To our US citizens- Happy 4th of July!
Busy day for me. Hope I dont get too much sun. For years I got a lupoid rash on my face on July 5th. Now I work hard not to be in the sun. Always wore sunblock.
Already found out my son is bringing a friend and his family to our house for supper. Told them to contribute a dish for dinner.
My 2 year old grandson is to be in the tricycle race today. He is very excited. Gets to have a flag on his tricycle! My happiness for the day.
Have a great one!
Busy day for me. Hope I dont get too much sun. For years I got a lupoid rash on my face on July 5th. Now I work hard not to be in the sun. Always wore sunblock.
Already found out my son is bringing a friend and his family to our house for supper. Told them to contribute a dish for dinner.
My 2 year old grandson is to be in the tricycle race today. He is very excited. Gets to have a flag on his tricycle! My happiness for the day.
Have a great one!
Haven't felt up to being on the computer until today. Sunny right now but calling for rain later. Might mess up the fireworks. My knee is healing slowly. My husband took me out yesterday for a few hours. It felt good to be out. I am worried, I have been doing my exercises each day but can't fully extend my leg yet. I feels like there is swelling there that prevents it from moving all the way. My sister-in-law who is an ortho nurse says I am going at the right pace and eventually it will move more. I can say that crutches make all the muscles hurt. LOL, my Mom was teasing me that I'm not that young anymore, ain't it the truth. We are going to a party at a friends house today. Just had to make a salad so I got off easy this year
Dallas, sorry to hear your not feeling well. A big bear hug to you.
Help01 Welcome, this is a great place to be for support.
MToennis enjoy your day with the family. My boys used to do peddle tractor pulls when they were little. It was so much fun.
Lise'
Hugs to all! PolarBear
July 4th... let's just say it's not my favorite holiday. Some drunk idiot yelled at my wife because we moved his trash can to park at a friend's house for two hours-- like we weren't going to move it back? I gently told him we were moving it back-- which is what you do in L.A., it's not a big deal-- but no, he can't let it go, he has to step to me and continue yelling at me and my wife. A bad situation, at that point I could not walk away or turn my back. I stood my ground and thanked him for being such a fine citizen while I waited for my wife to start the car. He told me to move somewhere else. Pretty ugly.
Again, not my favorite holiday. I love my country, but IMHO, we don't have much to celebrate in the last ten years or so, and I'd just as soon skip this one until we do. Apologies and respect to those who disagree.
Liseo, everyone tells me that knee surgery recovery is really tough, and there is, like, this one really bad moment when you think it won't get better, and it's usually a range of motion issue. My mom and two of her best friends say that the pain and discomfort stays at a plateau for quite a long time-- just long enough for you to get nervous-- and then drops off sharply. But that PT is rough.
Dallas, feel better, a little worried about ya. Okay, I'm out, I don't wanna rain on anyone's parade. I just remember the fourth of July in 1976, when I felt much more positive about the whole thing.
Thanks for listening,
Catalyzt