MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Today I go to the dentist and the rheumy as well as getting an allergy shot. I think it is called a SHOT day. Eating up my life. I plan to discuss with my rheumy why I never get a return call from them when I have a question. NEVER! So frustrating!
As you can tell, I hate sitting in DRs offices. Makes my mood a little foul. MMMM, maybe that is why they dont want to talk to me. Although I try to be pleasant when I am there.
Hope you all have a better day than I think I will have. (Must get rid of this megative thinking) #@@# (wonder what this one is? Maybe a guy with sideburns?)
As you can tell, I hate sitting in DRs offices. Makes my mood a little foul. MMMM, maybe that is why they dont want to talk to me. Although I try to be pleasant when I am there.
Hope you all have a better day than I think I will have. (Must get rid of this megative thinking) #@@# (wonder what this one is? Maybe a guy with sideburns?)
MT - starting to feel like a pin cushion? hope your appointments go well and I hope those negative feelings leave you alone!
JM - Have fun with the kids and I hope the pain dissipates quickly enough for you to enjoy your day.
As for me, I've run some errands and I fell like napping this afternoon but I get so much pleasure out of cooking, I might plan and make a special meal for my family tonight since we will be together...getting rare with their busy social schedules these days! :)
Have a great day everyone!
Jose
JM - I hope you have a lovely day, I consider alternative methods myself. My mom, who had polymytocitis, used Oregamax (wild oregano capsules) in combination with her treatments from her doctor. We don't know what it was that helped, but it seemed that soon after she started taking oregamax she started to get better, and is now almost 100% back to her old self. I've heard good things about acupuncture too, but when I asked my rheumy she was pessimistic... I hate that... if she's not going to research new ideas... then I will! And if I'm willing to do that, she should support me! Grrr...
Josee - I hope you enjoy the blessing of family time together this evening ^_^
Today is my dad's b-day! ^_^ I got him a fruit basket thingy... delivered to the door (was supposed to go to his work, but then he took vacation time and now is at home -_-;;;) He liked it for all of 2 minutes then said they are way too expensive and I should have just made it myself. T_T I tried. Well, perhaps he'll be in a more birthday mood when we have cake ^_^ See you later everyone!
MT-- I was just telling Josee it really helps me to vent here so my frustration doesn't "leak" when I don't want it to! Yeah-- I would call the doctor's office in a few days and say things like, "I'm not getting return phone calls. This is unacceptable. What can we do to improve this? Do I need to speak with a supervisor? I'd rather not make a complaint, but this is becoming a personal safety issue." Or something like that...
JM-- great giving the kids swimming lessons! (I've been doing the same thing with my dog! I teach him to swim, and he teaches me how to SLEEP, it's a good trade.) And I remember how much I loved going to Grandmas...
Josee-- Ya, have a nice meal with your family, even though my wife and I have no kids it is rare that we get a chance to make a nice meal together... and it's great when we do.
And yeah... I got the Miata yesterday. My mechanic helped me talk them down $1,100! The body and the engine are in excellent condition, though it will need struts, tires, etc. 65,000 miles on it, and I got it for almost a quarter of the list price. (Well, it's a nine year old car, but it does seem like a lot of bang for the buck, and a used Civic or something would probably have been the same price and only slightly better gas mileage.)
The air conditioning is ice cold! I can drive around town and run errands, and I feel so much more alert when I'm driving, what a huge difference!
However, it was only after I bought the car that I actually shut the air conditioning off... and stepped on the gas. Suddenly, it's like... there are just no other cars around anymore. They are all in the rear view mirror.
Good lord. I mean, I know that Porsches and Z3s and many other cars are quicker... but to me, the Miata just seems shockingly fast. Took my wife around the neighborhood with the top down... she was pretty blown away.
--Catalyzt
The Rheumy is decreasing the Plaquenil because of the Eye Drs diagnosis of Macular Degeneration. She is afraid it is really Plaquenil toxicity. Got a script for clonazipam. Seems the telephone calls are going through a central triage and getting lost! Said she had a lot of patients complaining about never getting calls returned. Gave me the name of the office manager to complain to. Said they never paid any attention to her complaints.According to the chart, the calls never got to her office. Well, I can complain with the best of them.
jm- Enjoy your family get together. Hope it is fun. I have used green tea and fish oil. Condroiton and glucosamine. Multi vitamins and am using Occuvite for my eyes now. The green tea and Smart Balance margerine helped my cholesterol. Not much has helped the pain except for steroids.
Josee- A nap would feel good right about now. Think I will try to stay up so I sleep tonight, though! Have a great dinner with your family.
era- Heres one for you !@@! Its you in your pigtails.
Cat- Sounds like some car! Have fun!
TO:jrccull, I use vitamins and herbal supplement to treat my mctd/lupus.I have been off all meds for one year and three months now.
I'am feeling much better...
My hair has grown back...
My blood pressure is back to normal 120/70,
it was190/99 and spike to 240/115.
Only had a few seizures,but that was caused from chemcials,sprayed in my house.
Thyroid levels are down,more energy...And my daughter say's i'am NOT as crabbie...LOL.
Hugs to all,Remember you are always in my thoughts and Prayers. Lisa
Fish-oil,organic Flax-seed oil,Calcium,magnesium,zinc,vitamin 'D',B-12,
DHEA,vit'C',ginkgo biloba,Ginseng,potassium,
Selenium,L-tyrosine,Saw palmetto,Sea kelp,
St.John's wort,Echinasea,one aspirin,...
also i drink,green tea/honey,& sassafras tea,and i eat a very healthy diet.No salt,no sugar,no red meat!
Lots of salmon,fresh(green)veggies & fruit..
Lots of spices,garlic,sage,ginger,cinnamon