MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Using a patient portal, I was able to get my labs in 10 hours from when they were drawn! And actually see the numbers! No more secrets.
Mary Ann
I saw your previous post-- my diagnosises keep changing, too. First maybe depression, then lupus, then mctd. I haven't had Anas for a long time. I also had a nice long near remission. Now I have, last I heard lupus like undifferentiated connective tissue disease. Last time I had bloods drawn, I saw my rheumy wasn't even taking ANAs, so I said isn't it the least you can do. Positive low titers. Does it prove anything. It may be because I'm old 62 and fat. Oye!
A physiatrist tried me on synthroid in the 80s based on possible fibro. I went off of it thinking I didn't really need it. My brain fog and fatigue increased. Ask them to take more than the TSH. I had an ultrasound of my thyroid and it had atrophied with cysts. Anyway I wasn't expecting my heart rate to change, but I was beginning to think it would just stop in the night, but now I feel like it has gone back to normal. I had a good argument for the endo, since I knew my thyroid numbers were fine on synthroid.
Anyway, I'm doing the halter in Jan, with my new cpap, so I expect that will be a fun night.
Michelle
Man, I hated that thing! They made me wear one after my beta blocker episode-- blood pressure was high, they put me on it them, my blood pressure crashed, and I discontinued abruptly-- a terrible idea, as you know, MT, both as a nurse and probably from hearing this story years ago. Catalyzt was very careless.
Hope all is well. Great seeing your labs online, isn't it? I grab those numbers and post anything weird on my medic alert USB.
Okay, that's a little paranoid.
Michellle, so far, every monitor and EP study has shown PACs, PVCs, and MAT but no AF. I hope that continues to be the case!
Mary Ann
http://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism
When I asked to go back on thyroid I thought it might help my brain fog. I never thought my heat rate would return to normal and I'd stop having palpitations. Also, my cholesterol went down 50 points. I really think I might have died, all the while my numbers were "in range" particularly my TSH. T4 and t3 were borderline. And I really had to be proactive on this one.
Mary Ann