MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
I was dx about 2 yrs ago and it took them like a full year to dx me. It has been a physical and emotional rollercoaster. I recently had surgery and had a terrible recovery but none of the Dr could tellme why??
I was very active played sports and all kinds of other activites and am very
currenlty. I am doing better and I am going to try and start playing vollyball and swimming tosee if this helps. I just want to meet people going through the same things as it is very hard to understand what isgoing on. Even the Dr are confused.
I was very active played sports and all kinds of other activites and am very
currenlty. I am doing better and I am going to try and start playing vollyball and swimming tosee if this helps. I just want to meet people going through the same things as it is very hard to understand what isgoing on. Even the Dr are confused.
You will enjoy this group. We are all very supportive. Read back posts for more information but remember we are all at different places and stages with MCTD. Glean what is good for you and forget the rest : )!
Terrilynne.
I think perhaps that the reason for the slow recovery after your surgery could be meds you take or just the low immune system that comes with the meds...and, if you're not on meds...just the fact that your immune system is all out of whack can lend itself to a slow recovery.
I have polymyositis along with the mctd and it definitely complicates things. I find that I lack speed with my cardio. It's the weakness in my proximal muscles in my legs that slow me down. I like to spin, step aerobics, interval and cross training classes and I lift weights as well. All of these things keep me mentally sound and physically feeling better. It is a roller coaster...I agree. But, when you find something that works for you...it gets better.
You can sound off here anytime!
Mary Ann
tendon fusion and osteotomy. I went for my final vist at the orthopod and my other foot my toes are starting to curl under. Uggggg
he said that I guess my disease was attacking my toe joints