As I mentioned in a previous post, I had my first follow up appt in February. I had pretty bad swelling and pain in my hands so my rheumatologist started me on medication. I’m currently taking Plaquenil - 200mg daily & down to 5mg daily of Prednisone. This has helped the pain/discomfort level go from a 9 to a 4. So awesome! BUT...then the labs came back:(
ALT and AST levels elevated for the first time ever (I run those labs every year even before diagnosed with MCTD). After three weeks and labs still elevated- Abdominal ultrasound next- all looked good. More blood work (Dr suspected muscle issues) and yep - CK levels just over 1,000 UGH!
So now more labs Friday and EMG. He suspects the Polymyositis is active. And now talks about moving from Plaquenil to MTX. I really don’t want to be on MTX.
I just got comfortable with taking Plaquenil and now already switching...
Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.
Well, my hair is again falling out. I had some success in keeping it while on Plaquenil and Medrol. I have been off of them for awhile, but on tons of vitamins up until a few months ago when I developed the poikiloderma and they had me go off all my OTC meds. I went back on the vitamin D lately since I was starting to hurt all over. This morning, I woke up to generalized pain. It has been...