MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
I go to my rheumatologist yesterday for a regular 6 mo visit. She informs me the practice is being bought out by a local hospital and she doesnt think she wants to work for them. Call back in a month or 2 and see if she is still there. Then, for the first time, she doesnt order any lab and of course no follow up appt. The appointment desk says, "oh, yeah, she is quitting".
Problem is, I have had 3 weeks of nausea that I have determined is caused by the Celebrex I was taking, so, I stopped taking it a week ago and had no nausea. But have had pain all over my body... toes, feet knees, lower back, mid back, upper back and neck, ribs, shoulders, elbows, wrists, fingers, muscles, jaw, headache..... Well, all over! Been taking Tylenol without much success. She says, I think you are stable. Here are your scripts. Same stuff. So, today I took a Celebrex and the pain is less, but the nausea is back.
The way you get a rheumatologist here is a long process starting with the family Drs referral and taking up to 3 months to get in. Any sugestions to deal with this pain until I can get a new DR? Pain meds knock me out. I take Medrol every day and it is destroying my bones. I cannot think of an answer to this. Has anyone had luck with chiropractic services?
Mary Ann
Problem is, I have had 3 weeks of nausea that I have determined is caused by the Celebrex I was taking, so, I stopped taking it a week ago and had no nausea. But have had pain all over my body... toes, feet knees, lower back, mid back, upper back and neck, ribs, shoulders, elbows, wrists, fingers, muscles, jaw, headache..... Well, all over! Been taking Tylenol without much success. She says, I think you are stable. Here are your scripts. Same stuff. So, today I took a Celebrex and the pain is less, but the nausea is back.
The way you get a rheumatologist here is a long process starting with the family Drs referral and taking up to 3 months to get in. Any sugestions to deal with this pain until I can get a new DR? Pain meds knock me out. I take Medrol every day and it is destroying my bones. I cannot think of an answer to this. Has anyone had luck with chiropractic services?
Mary Ann
-kate
This stinks! Prevacid helps me with nausea. I take 30 mg up to twice a day. I don't usually need the second one but I have recently notice if I change my 'normal' eating patterns it triggers nausea. It would be nice if THAT was your trigger too. For example, more wheat products, or corn ( actually allergic to corn) , skipping breakfast ect.... So, I try to eat at the same time and not overdo on whatever food item.
I think with all the meds we're on we forget how harsh they are until we react to something new. I take Aleve for general pain and use heat and ice. Another thing to insider is your bed. It may be time for new mattresses.
As far as the dr. goes call back the office and speak with the nurse or ask to see an associate. It sounds like you're in a flair if everything is hurting.
Praying for you!
Terrilynne
I already take Prevacid 30 mg 2 times a day and Carafate at night. I think I will keep a food diary and try to see if there is a connection with my food too. I have Lactose intolerance, but can eat a small amount of dairy. That may have changed. Also, My bed is on blocks to keep my head up at night.
Thanks for the Chiropractor info.
If you think of anything else, let me know. She seems to think the nausea is a result of stress and just wants me to get that under control. Right! Life, life, life......
Mary Ann
Thanks for the understanding.