MCTD Support Group

Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...

614 Members
1,869 Posts
0 Online
Allergies & Immunity
/ MCTD Support Group

Cannot get out

MToennis
MToennis
I have been sitting in this house for almost a week now. It keeps snowing, iceing, and raining. The snow is a foot high in the driveway with 2 and a half inches of ice under it all. Yesterday, it started raining but has not melted much.
This is not doing me much good. I complain about not getting enough rest, but now have rested but dont feel rested. I am going to try to get out today. Not moving around has me stiff and sore. A couple of my friends have fallen and broken bones in this mess. The fear of that has kept me in.
Anyway, I have learned that sleeping a lot does not get rid of the fatigue. So I guess it was a lesson learned. I should have been exercising at home. Another lesson learned! I also learned there is nothing on TV and I can only read so much! LOL!
I hope the weather has been kinder to at least some of you!
Mary Ann
Catalyzt
Catalyzt
I hear you, MT. I have a really bad flu, and though I can now get to work and get to class, I just have zero energy, and I stayed home for four days already, so I have total cabin fever.

Aerobic exercise is impossible, I cough too hard. I can do 15-minute my dumb-bell workout and my crunches-- it's a short workout with heavy weights-- twice a week, and I can walk the dogs for 20 minutes, but I have to sleep a lot.

And yeah, getting too much rest is definitely bad, does not help. What is usually perfect is 7 or 8 hours of sleep, an hour nap, and 20 minutes of meditation. But I need way more than that now.

The dogs basically think I am another dog at this point... we all just lie around. I'm acting a bit like a dog sometimes as well.

My wife now has this cold as well, and we have not started fighting yet, but if we both are indoors much longer, it's inevitable.
MToennis
MToennis
Luckily, I have missed the flu, although my daughter had it. Sorry to hear you have been ill. It takes a long time to get over the flu, 4-6 weeks is common. I hope the dogs dont get tired of you taking over their place in the family! Both of you get well soon!
Mary Ann
operalene
operalene
This winter here where I live in the Northeast has been really rough and did a real number on me and I wound up having things act up again. It was okay until the snow got really deep and we got the 14 below zero. I was snowshoeing a few times a week and that is a great exercise for me. But this snow got too deep and was like quicksand, you couldn't stay on top plus the wind covered my tracks. Things I had scheduled got cancelled constantly and my DH took my car every morning to go skiing which I can't do anymore. Result bad attitude and by the end of it all it was a nosedive. The worst was him coming home after skiing being all happy and healthy looking. I was not amused!

Happy for all of us it's spring!