MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
am in the graden working pretty hard the past few days and have taken on caring of two young kids for the past week as much as possible so have been on feet but makes my hips sooooo sore.
yoga, must be like week 10 or even 12 since i began that every wednesday night, a fabulous choice of exercise and have just purchased a piece of equipment to put under the bed, ab pro thing lol, for hannah. but with garden, dogs, daughter to care for, am happy with the little i do.....i think.
Once I work up to five days I want to start walking...I really have to loose some (really a lot) weight.
Was on vacation and went for a couple of hour long hikes this past week. My right foot was numb for a while and then it went away on its own. I felt almost normal afterwards. I think exercise is very important; my fingers hurt badly every morning until I move them. it's probably the same for the rest of my body.
All joking a side it's something I need to get sorted, but how do you exercise when your body does not even want to get up.
When I can get out of bed early enough that is.
Yoga actually makes my joints feel better though my muscles freak out sometimes.
The Bad News: Some of the above is probably dangerous and above my ability. On the lineup, the surfers sometimes ask me if I am okay because I am panting so hard-- I have some compromised lung function that I don't feel like measuring. My hands and feet will go numb in cold water, and stay that way for hours after emerging. And this year, the longest I could stay in the water body-boarding was about a half hour, catching 7 to 10 waves, rides were about 10 to 15 seconds long. Skiing is becoming increasingly problematic and painful-- if I ski for two or more days in a row, I am very sore for a week. Also, I now have a disturbing tendency to crash on my left side, which tells me that probably, I am losing strength in my left leg, which is the one that had the clot and also the one that was stung by a stingray in '08. At altitudes above 8,000 feet, I really start to have more serious breathing problems, dizziness, and having to rest frequently.
This will probably be my last season of big-mountain skiing-- I really want to ski Mammoth before I hang it up and just ski local mountains. Then again, I said that last year.
Here comes Cat and blows us all out of the water again.
And I am overweight and teaching people about diet.
I feel so......
Oh well.
Mary Ann