Marfan Syndrome Support Group
Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart. This may produce shortness of breath, an irregular pulse, and undue...
My son has been diagnosed with Marfan's since he was approx. 15 yrs. old. He will soon be 20 yrs. old.
My question is this. I have heard that young men can continue to grow until they are almost 24 or 25??
I have concerns about this, because he is already 6 feet and 6 1/2 inches tall and he only weighs 143 pounds. Doesn't matter how much he eats...never seems to gain any significant amount of weight.
I've seen him consume an entire tub of ice cream...and yet he stays so thin. Is there a chance that his "growth" period has ended?
Really hope so, because he is "bending" his back a lot, just to talk to people and he's getting anxious about the continued "growing" part.
He sees a regular cardiologist on an annual basis.
Sure hope he stops growing!
My question is this. I have heard that young men can continue to grow until they are almost 24 or 25??
I have concerns about this, because he is already 6 feet and 6 1/2 inches tall and he only weighs 143 pounds. Doesn't matter how much he eats...never seems to gain any significant amount of weight.
I've seen him consume an entire tub of ice cream...and yet he stays so thin. Is there a chance that his "growth" period has ended?
Really hope so, because he is "bending" his back a lot, just to talk to people and he's getting anxious about the continued "growing" part.
He sees a regular cardiologist on an annual basis.
Sure hope he stops growing!
Usually with my son he eats so much I have to make a double meal 1/2 is for the rest of us and he eats that much.
We hide some of the more prized food, no offense if he is going to eat a lot its not going to be a tub of ice cream, if they are in an active growing stage they still need to be eating right, otherwise its just going to leech it from other areas. That was also our way of seeing if he was hungry or just binging. We have a small fridge in the garage we keep locked for the goodies, but he is welcome to as much fruits, veggies and grains as he wants and every dinner I cook extra meat so its there if he wants to snack on it, and if not I use it in the next meal. For Lunch he can eat up to 4 sandwiches, I dont know where it goes cause he is still skin and bones...lol