Lymphedema Support Group

Lymphedema is a condition of localized fluid retention caused by a compromised lymphatic system. The lymphatic system (often referred to as the body's "second" circulatory system) collects and filters the interstitial fluid of the body. Lymphedema has been barely recognized as being a serious health problem; however, this is slowly changing due to education and awareness.

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Lympedema and weight gain

Does lympedema affect the overall body weight apart from the affected areas? I eat healthly although i do not real do exercises. I do go for a walk.

I have cut on sugars, Fizzy drinks, sweets etc. I hardly it sugary food.I eat plenty of fruits and drink lots of water. My meal does not real include alot of fatty food at all. I have been doing this for a while now, but i seem to be gained weight than loosing. Now i am worried, has lympedema has to do with it.

Anyone? Thank you

Replies

deleted_user
deleted_user

Yes, lymphedema adds to body weight. I would estimate that I carry an additional 30-40 lb. of weight with my lymphedema. Trish
deleted_user
deleted_user

I have always had weight issues, but its been the last few years the lymphedema set it, my highest known weight was 550 but may have been more, i recently lost 31 pounds but regained 10, i am losing some again, changed my foods and recently got the lymphedema pump. I have no clue what my swelling weight is but i am very large, i have tumor like masses on my legs, hips and behind, with the extra skin i assume i have about 80 to 100 extra pounds that is not fat
deleted_user
deleted_user

Yes, I believe have lymphedema does affect your whole body weight. I have been placed on a low fat, low salt, NHFCS diet. it seems to have helped some. nanaj
deleted_user
deleted_user

That was my question too....i've changed my diet, i walk little over a mile at least 4xs a week, don't eat after 7pm and in less than 2wks went up 8lbs. I cried. My quesiton to my lymphodema therapist was how much weight does the fluid add to the scale. She couldn't tell me specifally but it's just my weight itself going up.I've actually gone down 2 pant sizes so i'm just gonna focus on inches. But if anyone has any ideas on how to get rid of the swelling in the upper abdomen that would be great. Seems to be one of the 3 obvious areas when measured that i'm pocketing the fluid. No matter how much exercise i'm doing it's not decreasing and it's discouraging me. Also makes my breathing more shallow. She says i breathe in good but struggle breathing out but i can feel the pressure if tht makes sense.
deleted_user
deleted_user

Well that explains why I am struggling with weight loss to. I am on fluid pills and if I am taking them daily then I am down 8lbs.
deleted_user
deleted_user

For all of you please stay strong and dont give up. I have primary lymphedema in both of my legs, I have had it since I was 16. I am going to be 29 in October. In 2009 I weighed 210 lbs and couldnt stand myself anymore. I changed my diet, switched my fluid intake, and started to do as much exercise/moving as possible with my legs being so big. Currently I weigh 131lbs and Im still going. DONT give up. If you need to ask me anything. Feel free to write me. I am always available.
toto33
toto33

good news for everyone who has lymphedema of the lower extremety.
beeing myself sufering from lymphedema for over 18 years, I am 34 now.last year after having a baby , my lymphedema got worse, my doctor told me to wear compression stockings and live with it.
but I couldn`t accept it. so I looked for alternatives on the internet, and I found a bristle brush for dry skin brushing, and I said to myself, that this is my last chance, or my lymphedema gets better or i really have to live with it. I started it in september 2011, and till now I do it everyday for 30 minutes before my shower, after a month of doing it averyday, I got sick, the toxins started to get elliminated from my body, my lymphedema decreased in volume, I was very happy with the results, and it`s been 8 months that i`m doing it every day, I feel great, but it`s been a month that I decided to cut dairy products, meat, chicken, eggs, white flour, white sugar, and guess what, my lymphedema is getting better every day, I am thrilled. so guys watch out what you put in your mouth, and do dry skin brushing before your shower and do not take hot showers. If you need more information ,I will tell you more about my experience, it takes time, you have to be patient, but it`s worth it. good luck. and I lost 16 pounds in 8 months.
deleted_user
deleted_user

You are ladies are so wonderful! You give me hope that I can still do better. I have lymphedema in both legs, left is worse.
I started out at 236lbs. With fluid pills and compression stockings and swimming 2-3 days a week, I have managed to lose 46lbs. But I have 65 to go.
I have not lost any weight in 3 weeks and I am starting to get upset. My legs are starting to get stronger with swimming, which feels good. But maybe really watching what I eat will have to be next and that brush.

I don't have dairy or wheat (90% of the time lol allergic) But I need to watch everything else.
My oldest daughter is getting married in June, I really would like to be down another 20lbs.
toto33
toto33

good news for everyone who has lymphedema of the lower extremety.
beeing myself sufering from lymphedema for over 18 years, I am 34 now.last year after having a baby , my lymphedema got worse, my doctor told me to wear compression stockings and live with it.
but I couldn`t accept it. so I looked for alternatives on the internet, and I found a bristle brush for dry skin brushing, and I said to myself, that this is my last chance, or my lymphedema gets better or i really have to live with it. I started it in september 2011, and till now I do it everyday for 30 minutes before my shower, after a month of doing it averyday, I got sick, the toxins started to get elliminated from my body, my lymphedema decreased in volume, I was very happy with the results, and it`s been 8 months that i`m doing it every day, I feel great, but it`s been a month that I decided to cut dairy products, meat, chicken, eggs, white flour, white sugar, and guess what, my lymphedema is getting better every day, I am thrilled. so guys watch out what you put in your mouth, and do dry skin brushing before your shower and do not take hot showers. If you need more information ,I will tell you more about my experience, it takes time, you have to be patient, but it`s worth it. good luck. and I lost 16 pounds in 8 months.
by the way, I was trying to loose weight before I strated dry brushing, but it`s impossible probably my body needed an outside force to help remove the toxins and the extra weight, but after doing dry skin brushing the weight just goes off, TRUST me. and good luck.


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deleted_user
deleted_user

Where do I find one of those brushes?
deleted_user
deleted_user

I found a brush!
toto33
toto33

the bristle brushes , you can order from well.ca it costs 7 $, and it's free shipping to canada, I usually order 5 brushes at the same time. it has to be natural bristle brush, not synthetic. I adore them,I change them every 2 months. My lymphedema got so better that I almost have normal feet. my doctore is going to be amazed when i well show him my feet. him who told me to live with it, asswhole.
at first the compression stockings was a nightmare, itching, burning, my skin became red, when I started to do the dry skin brushing, I don't even feel the stockings on my skin, is as I am not wearing them. I am very happy.very very happy.
siona12
siona12

I have lymphedema in my right leg 2nd traumatic injury, compression barely helps it, my other leg does not have lymphadema but has some swelling due to multiple ankle fractures . I am on a carb free /very low carb diet and have seen some weight loss but minimal and some days it appears I have gained a pound or 2 , how much of this is can I attribute to edema ? I am extremely frustrated because my diet is so strict and I am keeping well to it yet not seeing objective results . Anyone have this experience ? Should I just disregard the number on the scale and keep going based on clothing and my appearance ?
dsf95
dsf95

I am also frustrated. I am 5'9" with a large frame. My "fighting weight" would probably be 180 lbs. I just look/ feel best there. I reached 191 lbs. after being a rickshaw driver for almost a year. But then I had to have a surgery and remove tortuous veins. Then, I started having a hormonal imbalance after surgery. I now weigh 212 lbs. , but a lot is muscle tone. I have kept the same weight for a year. I'm not going to be too hard on myself right now. I rely on biking and shiatsu massage. I guess I do "wet brushing" with a bath brush in the bath. I also found a supplement called lymphatonic that helps me. I also use Herbalife.