Lyme Disease Support Group
Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.
I found this new doctor from freinds that also live in MD and travel to NJ. Once the intial visit of 300 and 500 for the test (igenex) best lab in the country I have never teated positive due to the fact od having it so long but they found it. Anyway after your first intial visit each visit after that is only $95.00 which is unheard of in the Lyme community!! Now we all three can afford to be treated.
You will have worse symptoms from taking meds because they kill off the Lyme which turns to toxins in our systems. I don't think 30 days is enough anyway. Regular Physicians don't have a clue so I agree that you need to see a LLMD.
I know my doctor you have to pay up front but they give you all the paper work to turn into your insurance co which the others never did either.
I know this is a scary thing to go through but coming here was a good idea. Alot of people on here are knowledgable and it is nice to know were are not alone!! I wish you much luck.
Thanks for the input everyone.
Unfortunately, because of all the controversy surrounding the treatment of Lyme disease, most LLMDs have stopped accepting insurance as it is far too difficult for them to get reimbursed.
Although I am in Maryland, I went to see an LLMD in New York City. I had to submit proof of payment and the standard claim form to my insurance company to obtain any reimbursement.
One positive thing is that insurance companies accept a standard claim form (Form 1500). You can obtain a copy of the form at http://www.dol.gov/owcp/dfec/regs/compliance/OWCP-1500.pdf in PDF format. Using Adobe Reader, you can actually fill the form out, save it to your computer, and print it. The address to which you mail the form should be on your insurance card with some indication that it is the address for Providers to submit claims.
Don't hold out hope, however, that you will receive anything near the amount you paid for the visit. My bill was over $700, but the insurance company only reimbursed me at the rate they would pay any out of network physician which was less than $200.
In dealing with labs you will learn that some will submit your bill directly to the insurance and await reimbursement before charging you the difference, other will charge you up forn are still willing to submit the necessary form and invoice to your insurance company, and others simply expect you to handle work.
Whatever you do, contact the billing office of the lab as quickly as possible to see what help they are willing to give you in dealing with insurance. In talking to them, make absolutely sure that the rate they are trying to charge you is the same as the rate they would charge the insurance company directly as the insurance company oftens negotiates much lower rates.
If the lab expects you to pay the bill and handle the paperwork yourself, follow the same procedure I outlined above for physician visits. Submit your bill along with a Form 1500 to your insurance company. Make sure that the bill you submit provides an itemized list of all of the tests performed. Your claim will be denied automatically if you send a bill that only shows the total amount paid.
Unfortunately, some tests, such as those performed by Igenex, are not considered legitimate laboratory tests by most if not all insurance companies. No matter what, however, still submit claims for all of the tests performed as you might just be one of the lucky ones who is covered.
The bottom line is that you have to fight for every dollar. Don't wait for anyone else to spring to your aid or offer to help. I know it can be incredibly frustrating and time consuming; however, its your money that your taking. If you're like me, every one those dollars count.
I hope this helps!
Dave J
Michael
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As far as herbs and natural remedies, My LLMD has said that they've been proven to HELP, but not to TREAT... just be careful!
I didn't get any money back from my initial visit to an LLMD and have gotten none back for all the other visits. But what my policy covers may well be different from what yours covers. I have an in network deductible and an out of network deductible, and then there's the issue of covered and non-covered expenses. It's can all be very confusing.
I would love to know of participating LLMD's in MD or nearby, as I live in Maryland too.
My current doctor is relatively inexpensive, compared to my former doctor. He charges $140/ half hour appointment, and does not accept insurance. I'm certain that it has to do with guarding himself from those who go after LLMDs. My doctor is published on the topic, and pretty well known in Lyme circles. He's quite good, but I'd love to have information on other doctors nearby who accept insurance. Please PM me if you have information. Thanks!
I have an out of network deductible and an out of network out of pocket, and by the time I meet both of those, I see no money back for my expenses. They're both quite high.