Lymie, I am so sorry to hear of your Tx misses. I can't say that wouldn't be considering the same thing placed in your position.

8.5 years of being on Tx...I can only imagine how hard that must have been. Have you seen any improvements at all?

Please know you are in my thoughts and prayers.

Many hugs and white lights to you!

Rats, I was hoping that your not being here meant you were better! I guess I would be feeling the same way as you do if I had been battling as long as you, but please, don't give up. Do NOT let this thing rule your life! Have you been tested for all the co-infections and such? I used to know your battle, but haven't heard from you for a while and well...I have Lyme. So refresh us, what have you been tested for, what did they find? Let's see if we can combine our experience and help you out in some way. What drug are they trying to put you on that causes mood swings?

Lymie... I'm so sorry for your pain and struggle. This has been a long time for you. If you are near the NY border I could recommend my LLMD to you if you think you want to try a new approach with a new team. I can understand how discouraged you must be.... I was wondering if you are treating the arthritis as arthritis instead of Lyme? I know this is a symptom of lyme, but it's been a long time and I'm wondering if a rheumatologist could help you.??? hugs to you...

I've got babesia as a co-infection and most likely Bartonella too. I was treating the arthritis as Lyme along with trying supplements, physical therapy, NSAIDs and heavier when needed. Nothing works. I am not as bad as I was years ago, but I have seen no improvement in the last 8 plus months. Part of the problem is that I just don't feel good enough to go to all the friggin doctors, to get tests done, to see the specialists and so on. Last time I saw an orthopedist he basically told me the joint is being destroyed, but there is nothing they can do until it is completely gone. I'm too young to have a replacement knee put in according to them, it would mean 3 replacements in my lifetime, and each replacement the risks go up substantially.

This may be controversial (maybe not), but I have it in my head to expect to get some percentage of the way back to healthy. I'd LOVE to get to 100%, but I suspect that's an unrealistic expectation given I'd had Lyme for 12 years before it was found.

Once I determine that I'm as far down the healed road as either the Dr's can take me or I can deal with, I'm planning to manage whatever sx remain as best I can.

Whether I'll do that as a rest period and then go at it to try for a cure, is too far down the road for me that I can't even put myself in that frame of mind.

But maybe you need a vacation from all the dr appts and drugs and supplements, etc? Sort of, enough is enough, for right now.

Sorry you're having a rough time, sweetie. Vent here whenever you need.

Jenn

It does sound like you need a break. If you can't get a replacement do you at least qualify for one of those scooters?

Dear fellow Lymie,

Just a couple suggestions. One I have done the other I would consider when/if that time comes.

First, schedule just one appointment a month -- or preferably every other month. Even if you're bad off -- as things seem to pass before the appointment happens -- once a month.

The last thing you want to do is wear youslef out flitting from pillar to post from doc to doc who really a. doesn't know what lyme is or fi they do b. they are going to play hit or miss with ABX.

Do not feel a prescription that makes you worse over the long haul...

Finally for that knee joint -- the jury is out on how effective it is -- but it's a way to avoid surgery on the chance that it works...

Please check this out

http://www.tigerflag.com/perfumeblog/?p=14

Keep us posted. We share your frustration.