Hi there.
I'm also new here. I'm 35 and have also been struggling with this for some time now.
Lyme has a way of isolating us from the normal world, for different reasons. I think it is a time to heal.
Are your on antibiotics? What are you eating?
I think one of the things that really help me is eating very healthy, giving the body all the nutrients it needs to do a good job in not allowing the infection to take any more space.
Grounding and meditation really help me too.
I am starting to get better now, but as you know, it is a bumpy road with more u-turns than I expected there to be.
If you ever feel you want to talk about things related to Lyme or other stuff, let me know. I'll be around.

I've written a reply twice. And it got eaten. Ugh. Even my attempts at getting support are a struggle

Anyway- I believe in healthy eating. I'm actually a natural foods chef.

I'm struggling with the daily exhaustion, aches/pains, and cognitive issues. Everyone just says "think positive " and I want to punch them at this point lol. I just feel totally alone, isolated and not understood. Does this make any sense?

It makes total sense.
You are not crazy.
If anything, other people are.
In the future they will be embarrassed of what they thought, what they said and didn't say, of what they did and didn't do.
For now, it can be frustrating to be around them, or to expect the least.
It's a situation that can bring us to the edge of desperation and anger at times.. Sometimes I just wanted (needed) someone to be there for me, just to be there. No need to do anything, just to be there and give me emotional support. Or at least, not deny my reality.
But...
People are in reality choosing ignorance (on both levels, intellectual and emotional) and there is nothing one can do about it.
All I know is truth is on my (our) side. There are people out there fighting the good fight to make it happen. And truth wants to come out. It's a matter of time.

I just realized how important my dog is. He is who I count on. I mean, I knew he was important, but he gives me balance and good vibes while all the rest is happening.

Hello The Wizard, Welcome to this forum. I find there definitely are people here and also they are not very active on the site. You got some valuable replies from intuitionroad. I definitely "get it"
because I've had Lyme and Chronic Fatigue for probably about 20 years. It took maybe ten years to
I.D. the Lyme. Even now, I'm not certain which symptoms are which. It's good to read that you're
a natural chef and pay attention to eating healthy. I've found that to be a key to feeling better.
As of now, I'm taking gluten and dairy and meat out of my diet. I eat a lot of hearty veggie soups
in the winter, and some rice crackers and almond butter, which I just had for breakfast. I don't make my own almond milk, but that's on the 'to do' list. I used to go out to eat fairly often but have
cut back on that. I find this 'illness' definitely impacts my social life. And I totally relate to what
I. R. said about wanting someone around 'to understand'. I too have a sweet shaggy dog and he
is such a comfort. I'm grateful that I"m able to care for him. It is definitely work. Now, he has his
winter cough and needs a lot of TLC.
About four years into dealing with doctors and Lyme, I found a support group. Actually,
I started one. We met for three months at my place and then relocated. The group grew much
to my surprise. I don't know what area you live in or if you're near a major city but I feel it's worth
it to look for a group. Now, we have
3 such groups in my area. It definitely isn't the answer to everything, but it was such an eye opener for me. It helped so much with that feeling of 'poor me' I"m the only one dealing with this
and what are all these various treatments about. I started buying books and learning a great deal. It has been invaluable to me over the past ten years. It is a crazy making and lonely illness
I feel, partly due to the 'black out' about it and the lack of education in the medical community,
though that is changing slowly over time.
I"m glad you posted here and send you good wishes for today and the holidays. Hang in
there.

Hi We are here. Please do not be alone. There are so many of who are you in your position. My mom gave me lyme disease at birth so I always was sick and went in and out of the hospital as long as I could remember. but I was fortunate enough to travel all around the country and many overseas doing hyperthermia, stem cells, apheresis, too many abx and over 2000 IVs. Unfortunately, none of the treatments and therapies were helpful to me, at least for a long run. In fact, it led me a debilitating brain and spine inflammation and crazy pain and burning sensation with severe mast cell disorder where I was extremely reactive to EVERYTHING and frequency of vomiting was quite norm daily :( But few people have informed about this lyme practitioner who sees people all around the country via skype and face-to-face (but not so much as she has a waiting list) so to make the story short, I had my first skype consult with her 27 months ago. The battle was pretty intense with barely no improvement but I was noticing pretty significant improvement that I was not able to see. I had enough energy to be more aggressive and grouchy as per my dad, my liquid diet was slowly changing to add more food into my diet, and I was up more instead of sleeping 18 hours a day. She has made me this unbelievable herbal protocol that are from Russia and Korea. And she has started me on this amazing injection called immuno-maf and glymino gcmaf cream. It was tough to get adjusted to but once it settled to adopt these ingredients into my body, it was showing me great acceleration of healing. I am forever debt to this practitioner and our whole family cannot live without her. Yes pls do your research and consider these immuno-maf and glymino transdermal products. It is definitely worthy of trying these. xx

Hello there. I am sorry to hear that you have been ill for so many years. You should pay attention to joint symptoms such as joint pain arthritis or chronic invasive synovitis in knee elbow large joints.I was a Lyme disease patient once, after few years, I found out a serial herb medicine which called DR ZHANG. They’ve been doing a medical study on Lyme disease by using herb medicine for a real long time. By using their medicine, my symptoms has been greatly relieved. And You can find helpful help on there website www.hepapro.com. Wish you get well early!