Lyme Disease Support Group
Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.
I'm new here so hi everyone!!!
I had 2 negative tests for Lyme. My nightmare started in December with the following symptoms.
Burning tongue, blurred vision, super red bloody eyes for 3 days, Both calves very painful 24/7 and weak, intense and severe burning in the entire body, tingling in the left side of my face, arms hands and feet, muscle spams in my whole body, muscle pain almost everywhere but the real problem is on my calves where it's really bad.
Had all blood tests done, EMG, MRI of my brain and spine, Spinal tap, going for a muscle biopsy in 10 days to rule out mitochondrial disease what my doc do not think that i have.
Specially about the calf pain if any one of you guys have my symptoms I will very much appreciated since my life have been a wrack for the past 5 months.
I had 2 negative tests for Lyme. My nightmare started in December with the following symptoms.
Burning tongue, blurred vision, super red bloody eyes for 3 days, Both calves very painful 24/7 and weak, intense and severe burning in the entire body, tingling in the left side of my face, arms hands and feet, muscle spams in my whole body, muscle pain almost everywhere but the real problem is on my calves where it's really bad.
Had all blood tests done, EMG, MRI of my brain and spine, Spinal tap, going for a muscle biopsy in 10 days to rule out mitochondrial disease what my doc do not think that i have.
Specially about the calf pain if any one of you guys have my symptoms I will very much appreciated since my life have been a wrack for the past 5 months.
I am sorry your life has been such a wreck and
that you are having all these symptoms. When I was first
treated for Lyme 15 years ago, my symptoms were somewhat
different. Everyone has different things going on with them.
I had very stiff muscles in my arms to the point where
they would 'freeze up' on me. This would last for 10-15 min
and then stop. I have gotten very painful cramps in my calves
off and on for many years. This happens while I"m sleeping
and wakes me up. I find that if I take magnesium before
going to bed, it usually prevents this from happening. .
People can test negative and still have Lyme.
Are you working with a Lyme Literate doctor? I would
suggest you watch the film "Under Our Skin". Have you
every seen it? I think it's available on Net Flicks and it
used to be available to rent in video stores. It gives you an
idea of what can be involved in the treatment and getting a
doctor to diagnose it. I will just add, that I did not use a lot
of antibiotics to treat mine. Many people do that, especially
in the film but some use herbs and homeopathics.
Hang in there and I hope you will get some
relief very soon. .