Lupus Foundation of America (lupus.org) is a good place for researching and finding helpful information. Also webmd and Mayo Clinic. You can do web searches that yield lots of information and answers to your questions. For instance, try searching on "symptoms of lupus" or "is fatigue a symptom of lupus."

Here's an idea that helped me. Keep a food and health log, wherein you list everything you eat and then how you feel throughout the day. This way you can look for a connection between a certain food and worsening symptoms. For me, I was able to discover that gluten, artificial sweeteners, maltodextrin, msg, too much sugar, etc., can make my symptoms worse. Being proactive about my health, watching what I eat, and taking supplements, have all worked together in my case for "keeping me afloat." Best wishes to you for finding things that will help you.

The most important place to find the information you are looking for is with an awesome Rheumatologist. Your friends here at DS will help you out too. WedMD is good but I learned everything from my Rheumatologist. I did EVERYTHING she told me to do. It took years and many cocktails of medications to be somewhat stable. 20yrs later, all you know what has taken a turn on me, and I'm at start all over again. I'll stay close to you and help you out if you would like. What questions, who, what, when, and where. Stress is my enemy. Seriously... Stay away from stress anyway you can. I will check back tomorrow. I have more doctor appointments and tests to run on me tomorrow and I'm tired from all of todays tests. Hang in there. We will support you the best we can. Gail

If you feel like you are drowning I would go see a pulmonary specialist.

Thank you so much for taking the time to respond. Very helpful. It has been a rough few weeks.

Helpful books include:
The Lupus Encyclopedia, by Dr. Donald E. Thomas, Jr.
The Lupus Book, by Dr. Daniel J. Wallace
Fabulupus: How to be young, successful and fabulous (with lupus), by Jessica Kundapur and Jodie Nimigon-Young
Coping with Lupus, by Robert H. Phillips
Despite Lupus: How to Live Well with a Chronic Illness, by Sara Gorman

Thank you so very much! I hope I can share what I learn.

Energy Returns After Mercury Chelation

Anna, an attractive woman in her late 30s, had a long history of health problems. More than a decade ago, she was training for a marathon when inexplicable fatigue set in. Over the next two years, it progressed to the point that she couldn’t walk a block without shortness of breath. She also developed recurrent MRSA skin infections and was in and out of the hospital for IV antibiotics. To top it all off, she was diagnosed with lupus.

Then Anna had her heavy metals tested and found that her mercury level was sky high. She underwent a course of chelation and, lo and behold, things slowly turned around. Today, she looks and feels like a million bucks. It’s been two years since she’s had a MRSA infection, her lab tests show no signs of mercury toxicity or lupus, and she just ran a 5K race!

— from Health & Healing by Julian Whitaker, MD

I've researched several sites and books that I see listed here but here is one I've referred to but don't see previously mentioned
http://www.mollysfund.org/
I've found some helpful information here also.

I've noticed that I get flares if I get short on sleep. I understand how you feel. It's tough and I had to use a lot of trial and error.

GAIL AND MICHAELO,
VERY GOOD ADVISE.
I WROTE AN ANSWER IN LUPUS IF ANYONE WANTS TO READ