Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hello all
I am miserable with daily sinus swelling and pain causing headaches.My dr has me on antibiotics and i'm taking over the counter meds ,also netti pot rinses.I am not getting better.the inflamation is so bad and has been bad for 2 months now.i have no mucus in my nose.Just swelling and post nasal drip.Is anyone else here having their lupus attack their sinuses?
nanny1611
I have sinus issues that periodically get better or worse, but never disappear. Hot broth and a supplement called InflamericZyme (by Olympian Labs) help me a little. Best wishes for finding something to work for you.
lighttheway
thxs for the tip nanny1611..I will look for the supplement.I'm just so ill with this and beaten down by it.
hershey09
Hi, I was recently diagnosed with lupus. I've had the same problem with sinuses as you but didn't know it was part of lupus. I have debilitating headaches but no drainage. Maybe you can try using a humidifier it may help. Thanks for posting I've had 10 sinus infections within the last year and a half. Diagnosed with lupus 2 weeks ago.
lighttheway
Hi hershey..Im glad to know I'm not alone,but sorry your feeling so awful too.sinus pain is just so hard to deal with.
twinmomab
I have Lupus and Sjogrens and both can cause sinus issues. I use Nasacort (over the counter for inflammation), Azelastine HCI (prescription nasal spray also for inflammation), and Ayr Saline Nasal Gel (over the counter). This combo has done wonders for me. I have a very hard time tasting and major sinus inflammation and these meds are the only reason I can taste and keep going. Good luck!
lighttheway
Thxs twinmomab for your support :-).....I will hopefully someday find what helps.Its trial and error for me as alot of things dont work or seem to make it worse.
twinmomab
Ask a doctor about Azelastine HCI, it's not one doctors prescribe often, but I do a lot of research, thank God!
lighttheway
I will ask as I'm still having daily sinus pain and headaches..thank you :-) I like to research too and learn as much as possible.
sksen
Hello. I have this exact issue. The post nasal drip causes constant nausea. I often wake up with sinus headaches. I can't do the netti pot but I've tried a million other things. My doctor is pretty apathetic and just keeps giving me prescriptions for Z-packs which I don't even bother with anymore. It didn't occur to me that it was Lupus related.
FiveHeifers
I am so glad to hear about this, I thought I was going crazy. I've had drainage from my left nostril for at least 3 yrs now. I was always told it was allergies. I've been on everything and nothing stops it. When it gets really bad I get a sore throat from the heavy drainage and can't eat from the nausea it causes. I feel like an old woman, keep Kleenex in my pockets now, since has been really bad since June 2016. I see my pcp this week and will tell her. She asked me about my sinuses several months ago and I told her no, I have been so used to it, now I'm glad to hear I'm not crazy.
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