From what i'v read online,I think if you are in remission then your tests will show that.

Actually, from what I've read about the illness, there is no test for lupus. It's generally diagnosed by looking at the total picture of a patient's symptoms over their entire history. Blood work is helpful, but it's only a clue, not a "lupus test".

Based on what I've heard, the most definitive diagnosis is one that's made from a biopsy, where the autoimmune response can be seen more directly. Friends in the UK have told me that in their clinics patients suspected of having lupus are referred to dermatologists for evaluation and diagnosis.

There is no one test for Lupus. It's a look at many blood tests, xrays, and symptoms, etc. There are 11 typical criteria that doctors look at to determine if you might have lupus. Its largely a guessing game, but depending on your number and severity of symptoms, you will get a diagnosis.
If you read anywhere that the ANA titre blood test indicates if you have lupus, this is wrong. I know people who have a negative ANA and still have a diagnosis. Also, I was in remission 1 year ago, and all my blood work still indicated that I "have" lupus (the blood markers they used to help diagnose the disease.. I said "have" there as most of the physical symptoms had disappeared in remission.)
Hope this helps. Its not an easy road to get a dx, but you'll get there eventually.

I was diagnosed with dermatimyositis and every time I go to the doctor they keep testing me for lupus. The last time I went the Dr. said that to be diagnosed with lupus the test has to read 40 or higher. Mine was a 40. She wasn't willing to diagnose lupus. I'm confused. Any input?

Hi,
when I was tested for Lupus I had a very high ANA, high anti dsDNA and a positive Lupus skin band test besides the typical symptoms.
I know you can have a Lupus diagnosis if only one of those is positive. However, if everything is positive the diagnosis is easier for doctors to make.

Regarding the doctor who said that readings on blood work had to show a certain number for a lupus diagnosis....according to very respected experts on lupus such as Dr. Sheldon Paul Blau, many lupus patients don't show positive blood tests. It's not a blood disease.

Lupus is not a disease that can be diagnosed based on simple blood testing, allegations that it is are not supported by the medical literature at all. It's a disease that many doctors aren't that knowledgeable about, so be careful about believing what they say if they don't have experience and knowledge about the illness.

Well I guess I am about to confuse matters even further. I have SLE, Psoriatic Arthritis and a dodgy heart. According to my Rheumatologist when I asked if I could ever hope to go into remission, his words "for you there will be no remission". The inference being: my disease will be controlled (by the many medications I consume daily), but remission....not on the cards.

I heard no remission either - just symptoms under control

My ANA's have been negative, but I got a diagnosis based on my symptoms and a positive anti DSdna.

According to research the complement levels are supposed to get better and the inflammation levels are supposed to decrease if in remission.

I had positive tests for ana and antibodies for years, now in remission all come back normal. (At least they think it is remission and are making me wait 4 months and rerun tests, but the symptoms are not gone).

Hello. I am Overwhelmed by the things that are happening to me and in my body since October 2016. I have taken many blood tests for lupus from my Gpa and a rheumatologist. I have also taken the Avise tests /Ana. On this test my Ana was 126, strong positive and the anti dsdna was 977 positive. But at the top, if reads no lupus. I know that I am not going crazy. I am bedridden sick and in severe pain at this very moment. Can someone please help me with some answers? Also I had urine test with protein, low creatinine and bun, along with high total protein and AST.

HELLO, I was diagnosed with LUPUS APP. 20years ago. The 1st thing I did was look it up AND I DIDN'T LIKE WHAT IT READ.
FELT LIKE I WAS HEADING HEAD FIRST INTO DOOM.
STARTED WITH PILLS AND THEY ROBBED ME OF MY LIFE, COULDN'T MOVE FAR, EYES BAD, RASH THE FOCAL POINT OF MY BEING.
THAT WAS IT.
I AM REFUSING TO HAVE LUPUS.
I HAVE HAD IT VERY BAD AT TIMES.
I REFUSE TO HAVE LUPUS MEDICATION OR CHEMO.
REGARDS TO READINGS.
YOUR DOCTOR WILL PROBERLY TAKE BLOOD
3 TO 4 MTHS. and this let's the Dr. know where you are standing at present.
IF IT'S HIGH, TAKE TIME OUT. REST IS CRUCIAL, GET FRESH AIR.
KEEP AWAY FROM SMOKERS.
LEARN YOUR SYMPTONS SO YOU CAN CONTROL THEM AS MUCH AS YOU CAN. KEEP OUT OF SUN LIGHT.

I HATE GETTING READY TO GO OUT SIDE, PLANS MADE, I WALK OUT TO THE CAR AND COME BACK INSIDE.
MY EYES HURT, MY BODY ACHES AND I FEEL SO QUILTY FOR NOT GOING TO WHERE I WAS GOING.
MOSTLY I AM MISSING OUT ON FRIENDSHIP.
YEARS AGO AS I TRAVELLED, I WAS TOLD BY A FEW PEOPLE I NEEDED "LAPUS LUZURI" CRYSTELS. I THOUGHT THIS A FUNNY COMMENT UNTIL I WENT TO A TOWN AND WAS GIVEN 2 Necklaces by different people AND THEY WORK.

I GET ANGRY AT MYSELF, WHAT WOULD HAVE TAKEN 1 HOUR NOW TAKES 10.

AT PRESENT I HAVE BEEN TRYING TO SEND BACK
GOODS BOUGHT ON LINE.
IT HAS TAKEN ME 1 WEEK TO DO 15 ITEMS.
I WAS NOT GOING TO LEAVE MY ROOM TILL I FINISHED THE TASK.
BUT I GAVE UP AND COME TO REST & WHEN I WENT INTO MESSAGES THIS SITE CAME UP, SO CHECKED IT OUT AND THIS IS HOW YOU GOT MY EMAIL.
FRIENDS WANTED