I am new to this kind of stuff. The nearest lupus support group is 8 hours away from where I live so I have turned to the internet. I have been reading and obtained alot of information from all. Quick history, found positive ana while in hosp for pancreas divisum in 2013. In 2014 started having joint stiffness everywhere when getting out of bed or just sitting for 5 min. It got worse, thought I porbably had RA. Grew up on a farm so used to having aches and pain all the time but this got worse. I was requiring more OTC sleep aids finally was started on low dose Xanax than required more. I started having one day of normal farm activity a month, the rest i was wasted. Started taking naps, I worked 12-hour nights, instead of just sleeping 4 hours, started sleeping at least 6-8 hours before and after work. Just was very tired. In 2015 I noticed I was having trouble lifting the 50# feed sacks and it became worse and manipulating my IV's at work. In Apr 2016 got pneumonia (first time sick) and I think it was a flare. I developed alot of symptoms that go with a flare. I went back to work after 6 wks , noticed I was having trouble remembering supplies I needed, words that I needed to chart but had to change my thoughts due to not being able to remember the term I wanted to use. I changed pcp's et she found lupus. My memory got worse at work, and than started having alot of muscle weakness and loss of strength. My pain would start at a 3/10 at the start of my shift, by midnight it would be a 10/10. My pcp started talking about my job and my immune system. I told her I could do this. But working in ICU and the main population is highly infectious and my arm muscles just gave out one night when I was in the middle of a procedure,I called it quits. I am now on Plaquenil, prednisone, trazadone and tramadol. INSAIDS don't help the pain.  I now order everything on line, my husband shops for meat, dairy and fresh produce. I have been through PT. I plan ahead when I have to go to an appt. I keep to home now. I have pain all the time, it never goes away, just changes places in my body. The fatigue changes all the time. My husband now has to open my orange juice, tide and etc. bottles. I may only clean one piece of furniture every 2 wks. The laundry gets behind. My husband is very understanding. I found a list of the 5 faces of fatigue, had him read it and he was shocked but now understands why I can't always answer him on how I feel. We had unusally warm weather in Mar so I got outside everyday, (with all the required stuff) and after a week, evidently had a flare, ran a temp,chilled and flat as a pancake (energy) for 2 days. I don't have the energy to venture outside.  I'm worried, I have not popped back. I do see my pcp this week. It's been 2 months since I have seen her but seems like I have gone downhill alot and fast. Does this happen?