Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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sweetpea15 04/14/2017

hello, I'm new to this group. I have Lupus, Rheumatoid Arthritis and possibly FEVR or Premature Retinopathy. I have a almost 1 year old daughter. I just started doing Benlysta Infusions and was wondering how anyone else taking this medicine, how it effects them? And how long it takes to start feeling better. I haven't been on medication for 4 or 5 months prior to having my first infusion this month.

twinmomab 04/15/2017

Welcome to the group. I have lupus and fibromyalgia. I haven't taken benlysta infusions but I have followed a few people on youtube that were on it. It seems to take a few months before anyone notices improvement, and a lot of side effects. I hope you have a successful run with it and things improve for you. I am going to try and see if my neurologist can get me approved IV immunoglobin infusions. It seems like a long shot with all the red tape from health insurance. I think it's ridiculous how much the insurance company rules over the kind of treatment we get. Keep me posted on your success. I'm rooting for you!

sweetpea15 04/15/2017

Thank you, insurance is ridiculous. I don't see why I have to pay thousands of dollars for something I didn't choose to have. Hopefully you get approved. Keep me updated on how you are doing also

nanny1611 04/16/2017

Hi, sweetpea15, and welcome to the group. I have lupus and myositis, but prednisone helped me. Hopefully the benlysta will work for you and you will begin to feel better. Sorry that I can't provide any feedback. Best wishes to you.

Amyg 04/25/2017

Hello. I have been on benlysta for 13months now. Let me say life changing for me! Do I still have not so great days , sure but not that often. I feel like I am part of the living again. It's takes about 5 treatments to notice a difference and the only side effect I have is the of the infusion some nausea (which I drink ginger ale) and fatigue (which I go home afterwards and sleep it off). Best of luck to you. Hang in there!

Michaeldoral 07/06/2017

Lupus is caused by toxic metal poisoning, especially from mercury. The cure is chelating and detoxing from all mercury. Resort to sodium alginate, which comes from seaweed! Read and research more about sodium alginate for chelating heavy metals! Standard disclaimer, I am not a medical doctor. Therefore, my remarks here are for academic and information purposes only. Always talk to a professional medical practitioner for medical counsel.

Also, here is a good paragraph from a rather relevant article for you!

Energy Returns After Mercury Chelation

Anna, an attractive woman in her late 30s, had a long history of health problems. More than a decade ago, she was training for a marathon when inexplicable fatigue set in. Over the next two years, it progressed to the point that she couldn’t walk a block without shortness of breath. She also developed recurrent MRSA skin infections and was in and out of the hospital for IV antibiotics. To top it all off, she was diagnosed with lupus.

Then Anna had her heavy metals tested and found that her mercury level was sky high. She underwent a course of chelation and, lo and behold, things slowly turned around. Today, she looks and feels like a million bucks. It’s been two years since she’s had a MRSA infection, her lab tests show no signs of mercury toxicity or lupus, and she just ran a 5K race!

— from Health & Healing by Julian Whitaker, MD

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