Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hi all,
I am trying to lose weight. I ended up putting on 60lbs from a medication I was using last year. I am finding it extremely hard to lose weight with lupus (and fibromyalgia). I feel like no-one really understands why I can't just lose it. They just think I am lazy and don't exercise. I also feel so out of control with my body since this happened. Every morning I feel like I have just woken up in a fat suit.
I was wondering if anyone feels the same or would like to do a bit of a weight loss or even weight maintenance group.
The goal does not have to be to lose tons of weight it would be living healthily and maintaining weight.
It could be a place where you can write "I wasn't well enough to exercise today" and be believed or writing 'I walked up the stair instead of the elevator' can be celebrated as the achievement it is when you are sick.
There wouldn't be any prescribed diet. You can do healthy, no preservatives, weight watchers, vegan, paleo whatever you like and the support will be for sticking to whatever plan you are using.
If there is already a group for this let me know or let me know your interest or suggestions either by replying here or in a personal message.
Coralie X
I am trying to lose weight. I ended up putting on 60lbs from a medication I was using last year. I am finding it extremely hard to lose weight with lupus (and fibromyalgia). I feel like no-one really understands why I can't just lose it. They just think I am lazy and don't exercise. I also feel so out of control with my body since this happened. Every morning I feel like I have just woken up in a fat suit.
I was wondering if anyone feels the same or would like to do a bit of a weight loss or even weight maintenance group.
The goal does not have to be to lose tons of weight it would be living healthily and maintaining weight.
It could be a place where you can write "I wasn't well enough to exercise today" and be believed or writing 'I walked up the stair instead of the elevator' can be celebrated as the achievement it is when you are sick.
There wouldn't be any prescribed diet. You can do healthy, no preservatives, weight watchers, vegan, paleo whatever you like and the support will be for sticking to whatever plan you are using.
If there is already a group for this let me know or let me know your interest or suggestions either by replying here or in a personal message.
Coralie X
http://www.myfitnesspal.com/groups/home/9240-lupus-losers
I named it Lupus Losers (LOL) and I hope we can get this up and going with a lot of participants. Thanks for the inspiration, Coralie!!!!
Melanie I still love your idea though and I am going to use that site for myself but maybe we could do the discussion part on DS? I am just worried that the myfitnesspal site is a little full on for some people who may not actually count calories or maybe someone who is a little less familiar with technology. I also think if someone is using dailystrength already they will be more likely to check in there.
What do others think?
Coralie X
Try taking it one day at a time. The only thing that works for me for exercises walking and some home activities (mostly learned through Physical therapy) Oh and reducing down those empty calories I eat.
Roni
Those people who have expressed interest should have got a link to the new group. If you would like to join but don't want to post here feel free to message me :)