My butterfly rash comes and goes also. As for the rashes, I use coconut oil, sometimes several times per day. It's safe, so I don't worry about it hurting me. As for bathing, one suggestion my doctor gave me is to "pat" myself dry rather than "rubbing".

Thank you so much for the good advice I will try that and it sounds like it will make me smell good too. I love the smell of coconut oil!

My rashes flare up after I work outside in the morning, even though I cover up with a gardening hat and a cloth that hangs down from it. But thankfully my rashes never persist into the following day. I have a rash right now, and it will disappear by morning.

Doctors never see me when I have the rash, because I don't work outside and then go to a doctor's appointment. So they totally disregard anything I say about getting rashes...obviously they don't believe that a rash can appear and disappear like that.

Well, in a way that goes around in a circle...they don't believe anything I say, so I don't believe anything they say anymore. Trust has a way of doing that...or lack of it. And it's interesting to see how upset they get when they notice that I'm disregarding what they say...can't take what they dish out, I guess...not my problem. I'm not the only person who feels this way, I find that more and more people are becoming very distrustful of doctors where I live.

If anyone wants me to trust them, they have to earn my trust.

As for the rashes, I find that a cool shower helps a lot. I think it removes the salt from the skin, which is an irritant...and cools the body to reverse the inflammatory response. Aloe lotion is something that also seems to help with any kind of skin problems.

Here, where I am there are so few doctors that it's really hard to get into see them, it takes me 3 to 4 months to see my specialist and the best ways to deal with the rash is at the bottom of the totem poll when I finally get to see him and our conversations are so rushed that I have taken to recording our visits on my phone so I can slow it down later and play it back just to get everything he is telling me.

I have buckets of the aloe lotion so I'm glad you said that works, I will have to give that a go. I have also started taking pictures with my phone of my face when my rash gets bad and I will show my doctor the pictures the next time I get in to see him, I did that one time when one of my kids broke out in hives and 45 minutes later when I was in the ER and the doctor finally got in the room the rash was gone but I had a time stamped picture on my phone that validated my store I did find it kind of maddening the look he gave me before I wiped out the picture.
I have noticed that even if I am not exposed to the sun, if I am just getting really hot my rash will start to show up. It's really wild, I have a social phobia of speaking in public and with my job they have been asking me to go and speak in front of a lot of people. I am really good at what I do but after 10 or 15 minutes up there with them staring at me I really start freaking out and my rash glows red the higher my body temp goes up.