Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
deleted_user
I have been diagnoised with idiopathic prca since may 2006. the doctors i see have tried cellcept, atg, treatments for parvo virus, higher doses of predisone, they have tried stopping all the meds they dare stop, switch my meds from prograf to cyclosporin and finially back to prograf, and stopped plaquniel.
They don't know what caused prca. I continue to think its sle causing this new crisis in my body.
I am transfusion dependent now, I recieve 2 pints of red blood cells every two weeks and will continue to do so for as long as i live. I've also had two bone biopseys.
They don't know what caused prca. I continue to think its sle causing this new crisis in my body.
I am transfusion dependent now, I recieve 2 pints of red blood cells every two weeks and will continue to do so for as long as i live. I've also had two bone biopseys.
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