I also have horrible chills, there are times I can't get warm.

Hi, Iwillnotbeavictim, and welcome to this forum of nice people. Sorry to hear of all you're going through. Most of us here know from experience that it is quite common for many of the autoimmune diseases to manifest in several different ways--all of which are scary, miserable, uncomfortable, etc. Because we are individuals, our symptoms vary, but usually overlap with others on this forum. And, different days, different ways. But once you're diagnosed and your doctor finds the treatment plan that works for you, things can get better. I would suggest keeping a food and health log. Sometimes this enables you to find a link between certain foods and a worsening of your symptoms. You can take a copy of your symptom list to each doctor so that s/he can see what you're experiencing and when. For me, I must eat gluten-free, avoid all artificial sweeteners and too much sugar, plus I've started making most everything I eat from scratch. Also, have your doctors checked you for nutrient deficiencies? Many of us with autoimmune diseases have a vitamin d deficiency, magnesium, iron, etc. Hope this info helps you, and best wishes for getting a quick diagnosis.

Hello, I am very sorry how you feel and please be assured that it will pass, because, if it is a flare-up (and it sounds as if it is), the flare-up will eventually go away and allow you to continue with your life. At the moment, the best you can do to yourself is to take a long rest on the sofa and "park yourself" on the sofa for as long as it takes to "get rid" of this flare-up... And please be kind to yourself and wait patiently for the flare-up to disappear, because, if you try to force forward with work etc. you may pay for your impatience with a much longer flare-up and perhaps some development into a serious health-upset.
Please be patient with yourself and please get well soon from Kristina.

lol, I do, and your not a hypochondriac. I have Lupus,but all my blood test never showed it,but the Ruemetologist says all the symptoms point to Lupus,so he diagnosed me with that along with fybromyalgia, and Oesteo Arthritis. You sound just like me,all the symptoms I have had are driving me crazy. Your not alone honey,were here for you.

Yellow Canary Thanks! I am a very straightforward person and when I posted here I received very little response. Really didn't think anyone on here cared. Very disappointed with the lack of responses. Honestly, I am so tired of playing the game "What Will I Wake Up With Tomorrow?". I have never been ill until about a year ago and then all hell broke loose. From knee pain, to shingles to an infection in my finger, to shin pain, the pads on my feet feeling like I have something stuck to them, to various joint pain. Errrrr!

I am so sorry you are going through this! When I was originally tested all my test results came out inconclusive. When I was tested again about a month later bye my rheumatologist I came up and I am all markers for lupus. Try getting retested. I'm sorry that you feel so yucky every day. I think when your first diagnosed you just have to get through those first few months until you start to feel better. That's what I'm hoping anyway. Hang in there and know that we are here for you.

Hi! Are you feeling any better now since this post? Have you started any meds? New to all this misery as well! Just curious....

Lupus has been nicknamed the disease of a 1000 faces because it manifests itself so differently all the time in all people.
What I'e found, for me anyway, is yoga. I do a weekly class which includes starting with breathing exercises & ending with meditation. It's a gentle yoga so fits alot of people with diff issues.
My biggest go to for all round wellness has been my reflexologist. I've been going monthly for yrs now. My therapist has a few clients with lupus so she really gets the big picture. Se does numerous types of alternative treatments and all I can say is - there would be a heck of a fight if anyone or anything tries to take these treatments away from me.