Gosh. You seem to have the connective tissue disease pretty well covered! My thought was Sjgren's but I'm no doctor. Good luck

wabby,I was to say the same thing..but lip tissue is sensitive..we neglect it..I'm sure you know they have lip balm with sunscreen..i too,am very photophobic..mainly affects my eyes..try somebalm,but if that stings,go back to what works! oops sorry,yes photosensitivity..so you would need to protect it like the rest of your skin..but we've talked about that before in here,haven't we? how some of us can even get "burned" under certain light sources inside as well? any how,give it a try,if you haven't already..pucker up!:) (the lip balm with sunscreen) hope it helps...

Thank you for your kind replies Wabby and edyebeady, it is very much appreciated.
The strange thing is that for almost three years I have been battling against my kidney-failure,
keeping my 10-12% functioning kidneys without Dialysis
with a wonderful vegetarian diet and lots of exercises,
hoping, that once again my kidney function may get better,
and there are those niggling things like the burning of my dry lips
which really gets at me. I am so glad for your answers, because it just shows how this disease throws all sorts of strange symptoms at us. I am greatful for your kind support and send you my kind regards,
Thanks again from Kristina.

I was diagnosed with lupus in September 2007 but had dry, cracked, bleeding lips since around April 2007. They thought it was cold sores and I tried everything prescription and over the counter but nothing cleared it up until I was put on prednisone after my diagnosis. Now I know that I'm gonna have a flare because my lips start to get bad. I too have kidney involvement but still have 73%. I have also been in a flare since the beginning of August and my kidneys are suffering but we can't seem to get the flare under control. I've tried so many different drugs to replace the prednisone and it's awful side effects but I always end up with allergic reactions to any new meds. I have started using a lip balm with sunscreen in it and it seems to work for the most part. I also find that something will work for awhile but then the next time I buy it, it doesn't work so I have to try something new. I hope this helps you. Good luck.

Hello, bookkeeper 64, thanks for your kind thoughts.
I am very sorry that your flare is not yet under control.
I can well understand your allergies and your drug-intolerance, I suffer from exactly the same problems, not only with medicines
and treatments, but other things as well.
This is sometimes very tiring & extremely frustrating.
Fortunately the Vaseline is just doing the trick on my lips right now,
but I know from experience, that I also have to change often the remedies that were working perfectly before...
I think that just comes with the disease...
It happens very often that all of a sudden I become allergic to what before worked as a remedy.... Strange disease...
I even have to use the same washing-powder, the same soap, the same shower-gel etc. and cotton, wool or silk
on my body and certainly never any synthetics,
just to make sure my body is not reacting allergic again.
Whenever a company changes their products
it always leaves me in total frustration,
because if they just change their product a little,
this might cause me an immediate allergic reaction and I am forced
to search for something else again and again and again...
The same with food etc. I actually ended-up eating the same food (cooked from scratch) every day,
I bake my own salt-less bread and, apart from one cup of coffee in the mornings I only drink (filtered) water all day long. Nothing else.
Of course, that is extremely boring, but at least I know my body (and my kidneys!!!) tolerate it very well...
and it keeps my kidneys happy at 10-12% functioning without Dialysis and nothing else matters at the moment....

Thanks again for your kind thoughts, it is very much appreciated,
kind regards from Kristina.