Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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jenflower 01/05/2013

So lately I have been cold. It's like I can't stay warm. This is unusual for me as I usually am hot. I read about raynauds in some posts. How do you diagnose this? I can't imagine what it will be like in summer being this cold.
Also this last week has been tough with the return to work from new years but it seems like I can't focus. I am so distracted by really small things. I can't seem to do the same amount of work in the same amount of time. I came home last night exhausted mentally. I didn't really do a lot at work. I was so tired I put the olive oil in with the cup cupboard. I haven't really experienced anything like this before and it's feaking me out.

Does anything like this happen to any of you?

Jen

deleted_user 01/06/2013

you know that can also be your thyroid...

tazesmom 01/06/2013

Hi Jen,I am cold all the time year round I sleep with socks on all summer and it gets very hot here, for a dx. of raynauds your fingers turn purple then white,along with certain blood work,mine do not change but they sure hurt and get very cold,memory problems are a problem for most of us it is called lupus fog and it sucks when I am overly tired or feel really bad I barely know my own name,google both,there are some great pics of raynauds as well as info,I was just reading it the other day,I have had my thyroid checked and it is fine,I have often hoped that was my problem because that can be treated,don't be so hard on yourself you have a very serious illness take care of you,Cindy

jenflower 01/06/2013

Thanks for the info. I will see about getting my thyroid checked again. As for "lupus fog", it is new to me. I've had lupus over 15 years never experienced it till nie. Just goes to show you howcomplex lupus is

Btw. I am feeling better. I kept on eating well, exercising and got a lot of rest this weekend. Thanks so much for giving me insight. I'm off now to research lupus fog

I hope everyone has a nice painless evening.

Jen

deleted_user 01/07/2013

I wore those fuzzy socks all summer when I sat on my screened in back porch-it would be 80 degrees and my feet and toes ice cold.Now strting this fall my hands are often ice cold.the ends of my fingertips and palms of my hands hurt, but I do not see a color change.Occasiaonally fingernails under thumbnails look bluish- but I was test last summer for Sjourns or however u spell it and do not appear to have this. Ellen

deleted_user 01/07/2013

oops- just realised Raynaud is the coldness stuff- do not think I have been tested for that one- what would that test be labeled as on bloodwk-I have had sosoo much blwk- hard to keep straight! Ellen

deleted_user 01/09/2013

I have put dirty glasses in the fridge (instead of the dishwasher) before. ha ha
Hang in there - especially when you are tired. Do something special to spoil yourself like take a long relaxing bath.
I find a heating pad (and now a heating blanket) help get me past that cold that doesn't go away. Of course you have to sit still long enough to feel the heat. Exercise really helps too.
Good luck and take it one day at a time.

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