Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Brain fog is the worst. I forgot when my birthday was...
The best for me was always to first take a hot bath and relax as much as is possible and then make sure to write everything down in a special day-to-day-calendar to make sure I won't forget anything... I also write down special points I must make when going to an appointment and i take the paper with all the points written down with me...I also write down instantly when I need anything from my day-to-day-shopping, to make sure I won't forget anything there either...
As I have said, it can cause frustration and it can be annoying, but fortunately it only lasts a little while for as long as the flare-up lasts...
To keep my "grey cells" continuing as best as they can under the flare-up-circumstances, I have started many years ago, to work on and try to solve my weekly crosswords... It is also a very encouraging past time, because nice prices can be won... and it is a welcome inspiration for my grey cells to continue working as alert as is possible, whenever I don't feel my usual alert self...
Good luck from Kristina.
Please let us know how you are getting on and which options are working best for you...
Best wishes from Kristina.
Lupus fog and confusion makes me: leave water running in the sink and walk away from it, I have rinsed off a night light and almost plugged it back into the wall while it was wet, I constantly forget what I'm saying in the middle of a sentence, and more. I've been to a neuro and there isn't much they can do. Apparently, as our disease flares and lessens, the fog does, too.
I once got lost on my way to work - a route I drove for almost 15 years. I was petrified. A neuro told me I might have "early onset alzheimer's" turns out, I had neurological lupus. It's scary, but it will pass with treatment.
To study the relationship between single-photonemission computed tomography (SPECT) brain imaging and neuropsychiatric signs/symptoms in a cohort of patients with systemic lupus erythematosus (SLE), analyzed using a stereotactic surface projection (SSP) technique.
But of course, they have no cure for brain fog, but at least they have figured out what to look for.