For me its both of my feet and my left hand....

Both my hands and my legs in constant pain especially my thighs. Oh and fatigue is really bad. hugs Marilyn Also I can barely see they are so blurry.

My hands and feet are the worst followed closely by my neck & legs. Sometimes my neck is the worst depending on how much the herniated discs are acting up. I was writing thank you cards for my son's birthday earlier today and I could only write a few lines without my hands cramping up in incredible pain. I had to break for a while and then start again with the same result. The same thing happens if I try to color with my son, after a few minutes I have to just pretend because it hurts so much and he will lose interest sometimes when he wants me to color with him and I have to stop. I can't play his video games for more than a few minutes without getting pins & needles in my hands. And my feet, I have told my husband before that some days I feel like if my doctors told me it would take away the pain to chop them off I would be really tempted. I use a heating pad on them which helps get me through the night. And yes Marilyn, the fatigue is so hard and makes everything - physical and emotional stress - so much more difficult when I feel exhausted all day. I crave bedtime from the moment I wake up till I go to sleep on most days that I cannot get a nap.

I am so glad we all can relate to each other since misery loves company I guess! I know it could be a lot worse but it is hard to think that way when you are dealing with the pain 24/7.

I have a problem with my right shoulder, neck, back, knees, and hips the most. I use heating pads and ice bags to help depending on my need.

for me its my legs... the other day i was at a funeral for a couple at our church and i was walking to the car and low and behold my legs gave out on me in fromt of a thousand people.. it was embarrassing on my way down my arms gave out on me and i landed on my knees then my face... it was horriblely embarrassing

AmyTx - Oh my!!!! Forget about being embarrassed - are you okay from that fall???

dallas2 & shadeseeker - Ooh, ladies I know all about that fatigue. There was a period of time before and after I was diagnosed that I could not even keep my eyes open. I'm so glad I don't have kids because I don't know how I'd take care of them. Before I had to stop working, I would dose off at my desk and sometimes I would go to the bathroom and take a cat nap. I can recall numerous instances where I'd have to take a 15 minute nap after being at work for an hour or two! Lupus and Fibro complicated by MDD, Anxiety Disorder, Panic Disorder, and depersonalization is NO FUN!!!!!!

Amy, I hope you are okay. That is horrible you had to go through that.

Beautii, I was the same way while I worked. I fell asleep in meetings, overslept for flights and appointments and was always having to make excuses, getting out of bed was the worst experience when I was working with lupus. I also fell asleep when I had girlfriends over and we were having "deep" conversations - on a few occasions - and I felt so bad because I didn't want them to think I didn't care about them or what they were sharing but I was in so much pain from just trying to stay awake. That is why I can't socialize much anymore. Since I got lupus, it hurts me physically to stay up late and my body just screams from within to go to sleep. I can't do it to myself anymore and pretend I am normal. I have to look after me and do what is best for my health and my body which unfortunately due to my extreme sun/heat sensitivity, pain & fatigue keeps me pretty anti social. I know I am going off on a tangent but there was another post about not letting lupus rule your life. And while I agree with that in theory, when I have felt as bad as I have for the last year, I have no choice but to let the lupus dictate what I can and cannot do. If I ignore my body and push myself, I get more sick and pay for it.

It's so ironic that you wrote about your shoulder. For the last week, my left shoulder and the muscle next to it have been so painful I never had this before. It's the worst when I'm sleeping - I can't find a comfortable position for myself. I always had pain in my legs, feet, hands and arms (are thgse enough painful body parts??) but never my shoulder. After I get up in the morning I take ultram and put capstasin cream on it (burns like crazy but relieves the pain. I never had an occassion where I couldn't move my shoulder though. Right now when I'm typing I can feel it starting so I think I'm just going to read the posts. I'm afraid to go into bed anyway cause of the pain!

I hope you feel find relief. I feel your pain.

Dale

other than a bruised ego i scrapped my knee and my nose up lol but im okay i cried once i got into the car...

well other than having a half toe and half thumb amputated from raynauds and vascultis i dont know if my toe lost footing first then my legs then my arms..i dunno it happened so fast..

shadeseeker - it's okay to go off on a tangent, that's what this forum is for and that's what we're here for. If we won't listen: who will? Right? Also, about lupus not ruling your life - as we know, the disease is totally unpredictable and does what it wants, when it wants and honestly, sometimes it does rule our lives but I think the major difference is the attitude we have about it. You're so right to not push your body because we will absolutely pay for it!! That ole saying 'no pain no gain' is BS when it comes to lupus. We have to take it easier on ourselves because not doing so could mean not walking for a couple of days, or weeks!!! :)

Dale - thanks for your contribution. You inspired me to pick up some muscle cream from Walmart. The Capzasin was a little much for what I could afford to spend so I got Equate Extra Strength pain reliever cream and slathered that on. It is minty and smells like Bengay but I still can't lift my right arm. Hopefully it feels better in the morning.

Amy - I'm glad you weren't too badly hurt. It sounded really painful!!

My neck hurts and my lower back, i'm tired, and my right ear is clogged. My allergies have been so bad lately.

Beauti.....Walgreen makes these sticky pads just like the expensive ones that you put onto your body and they heat up. They are compared to Capsaicin HOT pat. You get 3 for around 5.00. They are big and you can even cut them in half. If you dont have walgreens where you live, I can buy you a pack and send them to you. You dont need to pay for them. If it helps you, it would be my pleasure to buy/send them to you. Thats what friends are for :)
xox

BTW... I fall constantly fall or bang into things as well. I split my face open needing stitches from opening a gate into my face! You asked if any body parts working right now??? NONE of my body parts work...EVER LOLOLOL. I have to laugh or Id cry

Add me to the hands and shoulder brigade . . . .