Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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Hello

Dand7
Dand7
I'm 24 years old(male) and have been trying to figure out what's going on with me for the last 4 years( on and off). The symptoms I have come around and they subside. I did some research and a lot of my symptoms match lupus.

Im wondering if any of you had any experiences like mine.

Skin- red dots all over arms legs ankles. Petechia?

Face - cheeks warm red on nose and cheeks. After I eat it gets even worse.

Tonsils swollen-Difficult to swallow. Hoarseness
H
Armpits-hurt ,red rash under both( this is very new, just started happening a day ago)

Sharp pains in chest

Fatigue

Eyes-floaters, White outline on things when moved across vision


I'm going back to see a doc this week. Did any of just ask your primary doctor to test you for this? Every time I see a primary they just tell me to see a neurologist. It's frustrating.
nanny1611
nanny1611
Getting a diagnosis of lupus (or some other autoimmune diseases) can take a long time and be very frustrating. Some of your symptoms were part of my problems, but not all. But I had other symptoms that you didn't list. We are all so different that our symptoms can be very individual. My doctor suspected lupus from the start, but my blood work was always negative for lupus. It took a couple skin biopsies to provide the diagnosis. In my case, a neuro diagnosed me with another autoimmune disease first (polymyositis), and then a dermatologist found the lupus a couple years later. Don't hesitate to see the neuro. If it hadn't been for the neuro who diagnosed my myositis, I would have died in a few more weeks. Yes, it is a frustrating road to getting diagnosed, but don't give up.

Regarding your face rash getting worse after eating, you might want to consider an elimination diet. Gluten is a big problem for me and causes me to flare. I have a couple friends who also can't tolerate gluten, but the one also breaks out on his face if he consumes soy, and another friend must stay away from dairy. If you do an elimination diet, be sure to eliminate one allergen at a time and stay away from that allergen for about 3 months before re-introducing it. Again, this can be trial-and-error, but for me it was worth it. Best wishes to you, Dand7.