I have had bilateral nodules in my lungs for about a year and a half. My pulmonologist wanted me to get CT scans every 3 months for 2 years to make sure they didn't grow. Then they could be considered non cancerous. My insurance wouldn't cover it, and I forgot as other things came up over the last year or so. I had one this Spring, and they were fruitful and multiplied, and grew. I opted to have a biopsy and it was discovered that I have epithelioid hemangio endothelioma. It is a rare form of cancer that doesn't have a lot of standard treatments that work. It is slow growing, and I still could have 5 to 10 years. I am waiting for the oncologist to call back with an appointment. Please tell me someone has heard of this. I've had the week of weeks trying to be patient and wait, and have done a lot of research. What a blow to the gut.
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