As I look back to my health scare last july
I moved in to my friends home July 1 2007, I had the scare and went into the hospital 28 days after I moved in, I look back on that and I see that it was coming on, meaning that I was really feeling bad and was in a lot of pain and stuff and on the 6th of july when I went to get in to the car and my leg went out on me. Then on the 7th of july when I could not get up off the floor when I went down to pick something off the ground. I was at the Bar where I sing at and I bent down to pick something up and could not get up. I should of picked up on it then, but then again, my dr would of done nothing for it, he would of said it is all with NF.
Then to be told when I went to the ER that I would regain my use of my legs in a few days. Mark was with me and told her I dont think you understand the problem here,she has no use of her legs I had to carry her to the car. The intern then said well we can put her in the over flow room and see if they can assist you.
The transporter that took me to get my ct scan knew more bout NF than she did or even the dr that saw me, He asked me right off do you have NF. I then remember the dr that came in said they were sending me to St JOES cuz no one knew what to do with me. it was the worst ride in my life in an amblance. The drove way to fast and i bounced around what seemed to be forever.
I dont remember much bout going into the ICU @ st joes. That sunday July 29th is a blur to me. Monday the 30th I think i was on so many drugs that i dont think i knew my name.
mark made a will for me and I signed it, he is also my POA and he played the role of my dad. So he could get all the needed info bout me.
Mark did not tell me until much later that they only gave me a 25% chance of living and if I did live i would never walk again.
Boy did i beat the odds. The removed 11 tumors and debulked 1 and the one in my brain steam was the one that worried them the most. Now back in 1992 i had one removed from the brain steam I am wondering if it was the same place.
I also had to deal with spinal fluid leakage 2 times and MRSA the 2nd time. it was so very scarry.
But do you know what got me through it the most? Was my friends on the NF BB my friends from the suport group and Mark.
If it was not for these people I dont think I would be here today. Then again if I had not met mark back in 2004, and this would of happened I would be dead today.
Bitty
I moved in to my friends home July 1 2007, I had the scare and went into the hospital 28 days after I moved in, I look back on that and I see that it was coming on, meaning that I was really feeling bad and was in a lot of pain and stuff and on the 6th of july when I went to get in to the car and my leg went out on me. Then on the 7th of july when I could not get up off the floor when I went down to pick something off the ground. I was at the Bar where I sing at and I bent down to pick something up and could not get up. I should of picked up on it then, but then again, my dr would of done nothing for it, he would of said it is all with NF.
Then to be told when I went to the ER that I would regain my use of my legs in a few days. Mark was with me and told her I dont think you understand the problem here,she has no use of her legs I had to carry her to the car. The intern then said well we can put her in the over flow room and see if they can assist you.
The transporter that took me to get my ct scan knew more bout NF than she did or even the dr that saw me, He asked me right off do you have NF. I then remember the dr that came in said they were sending me to St JOES cuz no one knew what to do with me. it was the worst ride in my life in an amblance. The drove way to fast and i bounced around what seemed to be forever.
I dont remember much bout going into the ICU @ st joes. That sunday July 29th is a blur to me. Monday the 30th I think i was on so many drugs that i dont think i knew my name.
mark made a will for me and I signed it, he is also my POA and he played the role of my dad. So he could get all the needed info bout me.
Mark did not tell me until much later that they only gave me a 25% chance of living and if I did live i would never walk again.
Boy did i beat the odds. The removed 11 tumors and debulked 1 and the one in my brain steam was the one that worried them the most. Now back in 1992 i had one removed from the brain steam I am wondering if it was the same place.
I also had to deal with spinal fluid leakage 2 times and MRSA the 2nd time. it was so very scarry.
But do you know what got me through it the most? Was my friends on the NF BB my friends from the suport group and Mark.
If it was not for these people I dont think I would be here today. Then again if I had not met mark back in 2004, and this would of happened I would be dead today.
Bitty
You are a strong person. There were lots of prayers for you last year and you have recovered beautifully.
finally one of my cousins told my aunt that i was limping really bad and was very concerned called my sister and father who called my dr (NF)and she said i needed to come in and be examined right away i had an MRI and saw a surgeon so fast . he said i needed surgery right away on my brain stem or i could die or b paralyzed . this all happened within 2 weeks . my only thing is i recovered very quickly i was out of the hospital including physical therapy within 2 months . i also think if it wasnt for my family i might not have lived also and of course GOD most of all!!!!
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