Liver Cancer Support Group

Hepatic tumors are tumors or growths on or in the liver. These growths can be benign or malignant (cancerous). They may be discovered on medical imaging (even for a different reason than the cancer itself), or may present in patients as an abdominal mass, hepatomegaly, abdominal pain, jaundice, or some other liver dysfunction.

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txkiki53 08/08/2012

I got my ct results on Monday, and they feel it is

Cholangiocarcinoma

which is in the bile ducts... says it is in the whole rifht lobe and goes into the left one. So I see the liver doctor on Friday. I figure surgery here I come..

Anyone else had this?

Annette

txkiki53 08/13/2012

Saw the liver doctor, says I need a biopsy.. oh my

MLTTexas 08/17/2012

Bless your heart. You have had to deal with so many different things. Like me, your faith is sustaining you and making you stronger. I'm praying for you. Marilyn

txkiki53 08/19/2012

My biopies are on 8/23 it will ct guided... They will take a biopsy of the tumor and several on the right lobe since all of it is affected.

let the games begin!

Marilyn, thank you... you also have a lot going on and you are correct my faith is what is getting me through this... It is what it is!
Annette

txkiki53 09/30/2012

well, I forgot to post... ugg they feel the biopsy is inconclusive, not sure if they got a good sample. I go againon 11/9 for mri, and if the tumor has grown I will have another type of biopsy. I am so ready to just get past this, what ever it is.........

deleted_user 10/17/2012

Are you the one who said you are using Dr. Thiele at utsw? How do you like him and do you think he is a good doctor?

How are you getting along? Do you have pain and if so does the doctor give you anything to help?

The Best to You,
Jilly2

txkiki53 10/17/2012

Jilly2,
yes I am using Dr. Thiele at UTSW and love him.......... He is the main professor over that department.

I try and not take anything for pain, but I have a high tolerance. I go again on 11/9 for mri to see if the tumor has grown if so I will have another biopsy
Annette

txkiki53 11/03/2012

Well, I go Friday for the MRi... in my charts it shows 2 hours of tests.. wow.......... then the waiting game for the results. I am going to try and see if the tech will just at least tell me if the tumor has grown.. lol I figure they won't but hey I am going to ask anyway.

hugs to all who are going thru such a difficult time,
Annette

deleted_user 11/27/2012

What did you find out? My Mother in Law was just diagnosed with Cholangiocarcinoma and they say that they cannot operate or do a transplant. I think she needs a new hospital. How did yours turn out?

deleted_user 12/26/2012

Hi txkiki53. I was looking for a site where I could relate to someone with the same type cancer i have. mine also is found in both ducts of my liver and called cholangiocarcinoma. They made me feel this is a rare type. I started my first chemo last week and when I went back for my second was told my blood count was to low and have to wait another week. I was wondering how your doing and what your doctors are trying. I'll be hoping to hear back from you or anyone else who has this same type. Thanks and prayers for all. Connie

Preciousbaby49 07/23/2019

Hello I am preciousbaby49 and have the same cancer and have had chemo and a surgery where they went in and implanted radioactive beads in and around my tumor. It did go down from 6.8 to 5.5. I have had this cancer
it will be 2 years and no pain. The surgery was done in March 2019 and now it did go from cancer marker 2.3 in normal range all of a sudden now its up to 5.4. I go next month for another cat scan to see whats going on. But I just had to chat I have never found a support group before. Debbie

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