Leukodystrophies Support Group
Leukodystrophy refers to progressive degeneration of the white matter of the brain due to imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fiber. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at least ten different chemicals. The leukodystrophies are a group...
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im not sure which group I belong to. When I was 25 I was diagnosed with OPCA. If any of you could point me in the right... READ MORE
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A neurologist said without a doubt I have leukodystrophy. The pain is in my legs. It's not constant, but when it is it... READ MORE
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Does Leukeariaois is a serious concern, what can be done for this, pain on center part of head. Low IgM ,ESR high,... READ MORE
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My friends and their little angel need to get in contact with anyone who can help them or just connect with. ... READ MORE
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My (almost 5) year old daugher was diagnosed just after her second birthday.She has the infantile form and has not had... READ MORE
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I LOST MY SON IN 2001 FOLLWING A BMTI HAVE STARTED TO SHOW SYMTONS AS A CARRIER HAD A DOC TRY TO TELL ME I WAS IN THE... READ MORE
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I got news today that my wee grandniece is in the hospice full time now. It really really sucks.My nephew and niece... READ MORE
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Mixed Signals Short Circuits Pain... ?If you or you are a caregiver of someone that is in ANY kind of pain or... READ MORE
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I've started Kaileb at Beginnings-Early Intervention Program. So far, he's doing well, doing everything a 6 1/2 month... READ MORE
