Let me be Me Community Group
A support group for those of us that need a safe place to share what ails us. Or what doesn't! This group is your group so you can be the person you really are, no need to pretend, no need to create some successful cyber image. Whether sharing our trials and tribulations, or our success's in life. Whether in sadness and needing comfort and support, or just...
I've I formed my family...
So....now I'm informing this family....
I'm not seeking any further pulmanary or cardio tests or treatment...
I'm not doing any more tests or treatments focused on quantity as opposed to quality
Of life any more.....
The autoimmune treatment I'm choosimg to do is contraindicatdd by the cardio problems.....
The opiates I'm steadily increasing to gain some quality of life re contraindicated
With the respiratory problems that I have....
It's pretty clear that any quality of life I gain from what Med/treatment choices
That I make are going to make for a terminal mix at some point.....
That's my choice...
Pm doc said we can likely get my pain controlled enough to have some kind of a life
For about six months to a couple of yrs. Until meds are maxed out...
She is not fully informed of cardio/respiratory problems...
Because she could not ethicly prescribe the pain relief I need if he were...
So...every time I take meds now...it's a little like Russian roullette...
That's my choice and my decision.
I just don't know that I have the right to keep coming here telling y'all who are choosing to fight on
and on, no matter what...well....anything..
My family in the real world is aware of not seeking other treatment....but not the risks involved
With the Med regime........that's my choice for now, too.
I can't ay any more about this at this time...
I don't know that I won't delete it as soon as I see it on the board...
Don't want pity....don't want to be told this is not the right path....
Just need to be honest with you guys....
I love you...jc
So....now I'm informing this family....
I'm not seeking any further pulmanary or cardio tests or treatment...
I'm not doing any more tests or treatments focused on quantity as opposed to quality
Of life any more.....
The autoimmune treatment I'm choosimg to do is contraindicatdd by the cardio problems.....
The opiates I'm steadily increasing to gain some quality of life re contraindicated
With the respiratory problems that I have....
It's pretty clear that any quality of life I gain from what Med/treatment choices
That I make are going to make for a terminal mix at some point.....
That's my choice...
Pm doc said we can likely get my pain controlled enough to have some kind of a life
For about six months to a couple of yrs. Until meds are maxed out...
She is not fully informed of cardio/respiratory problems...
Because she could not ethicly prescribe the pain relief I need if he were...
So...every time I take meds now...it's a little like Russian roullette...
That's my choice and my decision.
I just don't know that I have the right to keep coming here telling y'all who are choosing to fight on
and on, no matter what...well....anything..
My family in the real world is aware of not seeking other treatment....but not the risks involved
With the Med regime........that's my choice for now, too.
I can't ay any more about this at this time...
I don't know that I won't delete it as soon as I see it on the board...
Don't want pity....don't want to be told this is not the right path....
Just need to be honest with you guys....
I love you...jc
I DID NOT DELETE YOUR REPLY.....don't know what's up here...
Goddamn it...this is not going to become an issue here...
Maybe your family feels like they are fighting a losing cause? Maybe your just that damn stubborn? So why won't you go take a chance on John Hopkins!?!
The heart knows what the heart knows....
I've said that as long as I can remember..it's never applied more...
I AM NOT LAYING DOWN ........I'm choosing my battles..
And...yeh..I AM that stubborn, Dixie...so...maybe I'll be here in thirty yrs...who knows?
Can we take this off-board now...please....I'm a drama queen in recovery and this is feelin' like old times to me :-) :-) :-) :-) :-)
LOVE YOU GUYS...EVERYONEOFYAS....
Love you, love you, love you!
Theresa
Hugs,
Theresa
and i'd like to give you a real hug. see who cries uncle first.
i'm gonna get withya though okay? i really need some palaver with you. love you buddy.
did i already say that?
i love you
PEACEfriend
t
Guess I could meet ya there....I'm in friggin' AR....remember? ... cognitive disfunction is rampant here..:-)
I actually had to make myself sneak up on your reply here.....
We're in it pretty deep, bud....
PLEASE don't stress about me, T....
You have enough to deal with.....I love ya, bud, and you know more then most
What's brought me to here...
I'd give so much to be able to /change your world...and ya know that..
Love you...jc
i could get there anyhow because i'm prone to flights of fancy
can go ANYWHERE thataway.
but wherever you are..i wish i could get bthere in the real world.
love you too bud........all mushy and sappy withit.
PEACEman.......just a little REAL PEACE..........my prayer forya right now
So, let's take the yellow brick road...
I feel the same way about those nasty little munchkins....thought I was the only one..
I don't like ommpa-loompas either..
just somethin not right about all of em.
flyin mokeys are pretty cool though
jan, i respect your decision. i've made a similar one myself. i'll go into it another time, but it's a quality vs quantity which isn't even a guarantee anyway. unfortunately, some of us are in the position to have to make those decisions and only we can make them.
i love you and your bravery and your ability to keep your head up and on straight most of the time anyway!
i thought you were in AZ, too, btw!!