yep, I have it too. But I have CFS. I hate it!! Sometimes it's so bad, it's worse than the pain because I can't function and then that effects my ability to focus, remember and think straight! I take B-12 shots for it, it helps. T and someone else was telling me that Sublingual B-12 helps if you can't get shots....you can get it OT at walmart or GMC
Hope you can get to feeling better....it's miserable to feel that way!
Hugs

I tried somethin' different and just Crashed...slept the a.m. away..............feelin' some better for it.
I'll check out the
B12. Dixie.......did I ever let u know I did some net search n found u can get the shots that way.....
Not sure I'd get or take somethin' like that thdoufh mail.............anyway....I looked it up when your doc didn't give u yours...

Did you try the sublimgual yet?

Hugs...jc

I went to GMC and they didn't know what I was talking about. :( I'll check walmart next for the sublingual b12
No, I don't think I would feel safe with the mail thing either. But thanks for looking :)

When I asked PM about B12 she said it was a good idea and added a couple of other ones for energy I can't remember...I'll have to ask again.
I know there"s a Med for it....I think given for auttoimmune fatigue? I need to ask Immonologist about that.
Supposed to v seeing a new rhuemy...they'll probably know.

I'm tired of bein' tired....gonna find some solutions!!!!

Might be from the meds some...but I usually tolerate those effects well.....

Anyone got other energy voosting ideas?
Hugs...jc

Dixie....oh, no..just noticed u have your dead cat up again.......
Hang in there........hugs...jc

Awww JC.... I get like that heaps.... so fatiuged... that I'm too tired to sleep.., sounds weird but true...
I might look into B12 shots as well, cause it startin to suck..... Was diagonosed with CFS in 1990, but I think it was the Lupus in disguise....

Dixie 's bored.... hmmmm... or brownie dribbling again..... he he....

Where'd my reply here go, damn it.

Seek...all my labs n MRI's come back no for Lupas.....and still my docs always come back to it for numerous reasons....did your labs always show it?

No JC... 99% of the time it doesn't show in my bloods..n yet I have just about all the common symptoms (95%) of Lupus....... plus a heap of nasty ones..... Males dont get Lupus.... was my biggest challenge.

They made an official diagnosis via bone marrow test... There are people out there that are serum (sp) ie blood negative... pretty rare..

Some reason the doc's are hesitant on calling Lupus.... In my case it wasn't until serious organ failures occurred till some-one actually took note n took it seriously.... Well thanks heap guys....

I think some of the meds I am on are masking the results as well..... ie Prednisone...

One of the main tests they use is ANA.... and seriously it can fluctuate in a couple of days, have heard rumors of daily ANA positive / negative fluctuations.... info from my Lupus Guru.... awesome lady....

You having DS troubles today??? hmmmm I could not spell "positive" to save my life today hmmmm.

...couldn't spell positive? Psychological block?
Just heard DH using his flity voice with female client...so am feeling free to throw myself at you again today...I'll have to get past ll your fans.....

Flirty voice
All your fans

My docs aren't hesitant on Lupas...they keeeep testing for because of symptamology....
I get the thing about men don't have Lupas......I'm a more than likely candidate for a coronary "event".... because I am a woman...and the ER doesn't have the
ekg's and blood work that show it....I'll have to be in cardiac arrest here before they treat a crisis....if then.

So, do you think you're getting the proper treatments now, Seek?
What's the prognosis I?

Awww, Jan...it sucks to feeling like you're dragging through life. I am familiar with that.

My doc has had me taking B12 tablets for quite a while and if they're doing anything, I don't know what! It's certainly worth a try, though.

Drag up a chair and plunk down....
xoxo

Weird how doc's don't take women seriously about coronary issues, and, yet men are pampered when they have indigestion....

Have you tried Plaquinal (sp) anti-malarial drug? for the symptamology?

Hmmmm flirty voice, works on clients..... he he.... think thats how I survived n did well in business... he he..

What me fans..... wahoooo....

Please excuse spelling .... Froggy Fog Blog..... day today.....

....you friggin guys are all alike.....good for business.....OK..well, it probably is and it pays my Med bills and keeps me pretty spoiled......but...it,s my excuse for flirting shamelessly with you so I'm keepin' it..

Not yet on plaquinal.....am supposed to start seeing a new rheumatlogist...will see what happens there.
My immunologist just recently started prednisone for auttoimmune ANYTHING...

Yep....

My Lupus is fairly steady, have flares regularly.... but every 4 years something pretty serious happens... not sure why... Ie things start breaking again...

Been having the one in 4 year event since last October... Started some serious immunosuppression in January this year.....

On heaps of meds, Immunosuppressants, steroids, vasodilators, warfarin..... etc etc.

My biggest problem is the damage it has done permanently, ie Lung damage, kidneys, blood vessels etc...