Kidney Stones Support Group
Kidney Stones are solid crystals of dissolved minerals in urine found inside the kidneys or ureters. They vary in size from as small as a grain of sand to as large as a golf ball. Kidney stones typically leave the body in the urine stream; if they grow relatively large before passing, obstruction of a ureter and distention with urine can cause severe pain most commonly...
Hi All! I am new to this board and hoping to share some info on what I have been going through for over 7 years now.
I have had massive amounts of stones in my left kidney for many many years. My Urologist/Surgeon said well over 100. After 10 Lithotripsies and countless lasers, my kidney gave up the battle and shut down. The blockage of the pieces and smaller stones in my ureter caused a log jam of sorts. That and all the scar tissue from the numerous stents and lasers. It is now non working at 12%. Thankfully, my right kidney is good and at 87-99%. So, my goal now is a low oxalate diet and keeping my right kidney healthy. My right does have a 5mm in the lower pole which he is watching.
So, monthly KUB's, blood tests for creatine levels and a very restricted diet with tons of water has me keeping my fingers crossed that the right stays healthy. I am heading to a Nephrologist soon to get a better angle on diet, nutrition and outlook.
Stay well and DRINK DRINK DRINK !
I have had massive amounts of stones in my left kidney for many many years. My Urologist/Surgeon said well over 100. After 10 Lithotripsies and countless lasers, my kidney gave up the battle and shut down. The blockage of the pieces and smaller stones in my ureter caused a log jam of sorts. That and all the scar tissue from the numerous stents and lasers. It is now non working at 12%. Thankfully, my right kidney is good and at 87-99%. So, my goal now is a low oxalate diet and keeping my right kidney healthy. My right does have a 5mm in the lower pole which he is watching.
So, monthly KUB's, blood tests for creatine levels and a very restricted diet with tons of water has me keeping my fingers crossed that the right stays healthy. I am heading to a Nephrologist soon to get a better angle on diet, nutrition and outlook.
Stay well and DRINK DRINK DRINK !
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Do you have calcium oxalate stones? What foods do you have to avoid for the oxalate? Have you been told anything about calcium intake?
Is there no way to replace a uterer? How often is your urine tested? Are you able to perform any of the tests yourself, at home.
Thank you for posting!!!
Don't know if Tropics will come back with an update or not.
I have been treated for many stones over the past 8-9 years...they were calcium oxalate, too, but after a 24-hour urine catch and analysis, I've not been given any dietary restrictions other than to continue to drink a lot, and use lemon juice to bring up the citrate or acidity of the urine, as that might help to inhibit the stone formation. It is so individual, though, that "stoners" (people who have more than a couple of stones) should really talk to their urologists for dietary advice. If you look up "low oxalate diet" or some such term, you can find lists of foods that should be avoided if your doctor tells you to reduce your intake of oxalate...things like peanuts and spinach and rhubarb, for example. (I would hate to have to avoid most of the things on the list, so I'm glad I haven't been told to do so!)
It seems that every time they work in the ureter to retrieve a stone, or maybe even the passage of a stone, there can be damage to the inside of the ureter, and as the scar tissue forms it reduces the available space for the next stone. There are ways to dilate the ureter, or surgeries they can do to get rid of blockages and such, but it doesn't always work. The problem is that with the function of that kidney being so low, probably any attempts to dilate the ureter wouldn't result in enough urine flow to keep it open...maybe the kidney function wouldn't improve anyway. People can live with just one kidney--my mom had a kidney removed many years ago because of a huge staghorn stone, and my cousin was born with just one kidney--so I would guess that the important thing for the original poster is to use x-rays to watch for stones that might be passed out of the other working kidney, to avoid a blockage there.
Hope you are doing well, Tropics!