Infertility Support Group
In vitro fertilization is one of the most common and utilized ways of treating conception problems. This support group is dedicated to those beginning their journey with IVF and needing support. Join the community and share your experiences, advice, and story with people going through similar challenges starting a family.
Hello, there.
I never thought I'd be sending my struggles and concerns out to total strangers via the internet, but then, I also never thought I'd be in the position in which I now find myself. And on the off chance that one person reads this and can relate and provide motivation, inspiration or simply peace of mind, then sharing this is worth it.
So - now a bit about myself and the reason I'm writing...
At 34, I found myself newly married for the second time in my life, and after about 9 months, I was finally able to convince my new husband that it was time to start trying to build a family. My husband and I have both always wanted to have children, and with multiple siblings on both sides, we envisioned our family including 2-3 children.
Unfortunately, once we began trying, we were met with month after month of disappointment. It wasn't long before I was tracking my temperature and using an ovulation predictor kit each month. And still: nothing.
So, in the spring of 2012, we finally met with a fertility specialist. And we found that other than the extra 20 lbs. I carried, we were both in perfect health, and there was no obvious reason for our infertility. I did have a uterine fibroid that was removed, but all other conditions seemed normal. So, at long last, in the spring of 2013 we tried IUI. And two weeks later, the day before I buried my step-father, we found out we were pregnant. About ten weeks later we discovered that we were carrying a baby boy, and we were thrilled. My pregnancy was uneventful, and I was lucky. No significant symptoms other than being tired and swollen. But then, it was summer, and I sit at a desk all day every day, so swollen ankles didn't seem that odd to me.
But something was not normal, and at 26 weeks I began experiencing excruciating upper abdominal and back pain, especially at night. Though I was calling my doctor about every other day, she never saw me. Instead, she suggested I had gas painds and directed me to take over the counter gas pills. Finally, at exactly 28 weeks, I called my doctor and told her that if she wouldn't see me, I was going to the ER, because I knew that my health and that of my baby was at risk. I was right. As it turns out, I was severaly pre-eclampic and had developed HELLP symptom, which means I had high liver enzymes and low blood platelets. I was lifelighted to the nearest hospital with maternal/fetal specialists, and an ultrasound showed that the blood was flowing both in and out of the umbilical chord as a result of my condition. The doctor indicated if we didn't deliver my baby that day, neither of us would make it through the night. So at 7:46pm on September 4, 2013 I underwent an emergency c-section and delivered the sweetest, cutest little 2 lb. 1 oz. baby boy. Eliot Asher came into this world with one tiny little mouse peep. He spent 11 weeks and 5 days in the NICU (50 miles from our home). But he is now a thriving, happy, ADORABLE little boy.
Two years ago, thankful that our little guy was healthy and happy and assuming we could easily add a second child via IUI (and that with a new doctor and better monitoring, I could carry another child to term), we went back to our fertility specialist. After all of the routine testing, as well as an outpatient procedure to remove "products of conception" from my uterus, we did our first IUI in September 2015. It failed. We tried twice more - both to no avail.
In December 2015 we were told by our health insurance provider (multiple times, mind you) that fertility treatment was covered. So, we started on our first round of IVF in January 2016. On January 29th we found out that our insurance company had made a mistake, and our IVF would not be covered. We wasted six subsequent months messing around with our insurance before deciding to move forward on our own last July.
We were thrilled when we ended up with SIX day five embryos, all chromosomally tested and deemed normal/healthy. And on October 18th, we transferred our top quality embryo. Our doctor had no reason to believe it wouldn't work, and neither did we. But, it didn't. And we were crushed. In December, we were scheduled to try again, when our transfer was canceled due to an abnormally thin uterine lining. And in January of this year, the same thing happened.
So, I made some changes. I began a new healthy diet and lost 10 pounds (a good start - just about 20 to go). I began acupuncture twice weekly and on her advice, I started getting to sleep no later than 11pm each night. I began taking Baby Aspirin, Vitamin E and Fish Oil. And I completely eliminated coffee and chocolate from my diet. Then, on February 26th, after trying something different (my doctor prepped me for an IUI but transferred our second embryo rather than inseminating), we failed again.
And now, at least we know why we have fertility issues: I have a chronically thin uterine lining that is unresponsive to hormone supplements. Even with all of the supplements they can give me, my lining has never exceed 6.5mm. When I conceived our son through IUI, my lining was 6.3mm. So, while it's possible for me to get pregnant, it is unlikely. We could try for months and never have a lining thick enough to support implantation. It's dumb. Really dumb. I've never been described as thin. And now I know I'm thin where no one else can see it, and where I need to be thick!
So, now we're faced with four options, none of which appeals to me:
1. Have an only child (I know it's not the worst thing in the world, but it's not what I want, and my little boy desparately wants a sibling)
2. Keep trying and hope for what my doctor has referred to as a "miracle month"... he'd not transfer one of our 4 remaining embryos unless and until my lining was at least 6mm.
3. Find (and pay the huge expense for) a gestational carrier, whose lining is better than mine.
4. Adopt
My husband and I have only just begun to discuss these options. It's tough to find time away from Eliot to have these honest conversations. And I have been turning the options over in my head pretty much all day every day.
Here's the thing: I don't feel like our family is complete. I'm not ready to give up. But we've spent tens of thousands of dollars already, and the cost of a gestational carrier or a domestic infant adoption is daunting. Just as daunting, though, is the thought of trying to keep my chin up cycle after cycle, with the various vaginal suppositories that put me in a really bad mood, until we land on another miracle month. Oh - and it should be noted that we aren't getting any younger. I am 41, and my husband is 44.
So, there you have it. I'm heartbroken. I'm fatigued. And I just want to hold a tiny little baby in my arms - just one. Is that too much to ask???
I also feel like my family would not be complete with just one child, although I'll be lucky just to have one. I have two brothers and their unwavering love and support and sense of humor have saved my sanity many times. I would want any child of mine to have siblings, people who will be there for my child after I'm gone.
I have been thinking about adoption a lot - possibly because I just binge-watched This is Us. In my state, it's way less expensive to adopt older children from foster care, but a lot of them have special needs. I spend a lot of time thinking about how much I would be willing to take on.
But I still want to hold a baby of my own. I think that's natural.
I don't have any answers for you, but I'm stressing out about similar options, so you're not alone. :-)
I ask this lightly as I know location and financials are limiting factors - are you able to get a second opinion? While it sounds like your doctor knows you and your body well, is there an RE within driving distance that specializes in severe cases and/or women with thin uterine lining? I understand that your frozen embryos are cared for with your current doctor. I'm just curious if the one variable that you change is getting additional expertise or suggestions? Sending you warm thoughts and lots of self care.
I've also been thinking a lot about adoption. But of the four choices we now have, that's my husband's least favorite option. So, I guess I'll see where we land.
Thank you so much for your reply and for assuring me that I'm not alone.
I appreciate your suggestion that I look into a second opinion. But I'm not inclined to do so. Given I've been with this fertility specialist since 2012, I do really trust him. I know of many people in the area who have experienced success under his guidance, and I know that the practice is one of the best in the country. For that I am lucky.
I do, however, think that I will put more stock in the acupuncturist's guidance this go round. It can't hurt to try some things that don't follow the natural path of western medicine, given that's not doing me a lot of good right now.
Again - thank you for encouraging me to keep trying.
My husband and I always wanted 3-4 kids, so we went to a perinatologist to make sure it was safe for me to try and have another baby. He said it was. So we began treatments of IUI again. We tried twice and nothing :( My dr. suggested IVF...I could not stomach that knowing I conceived with IUI. So I decided to wait a little bit (honestly I just didn't have the time for time off work) While "waiting" we conceived naturally. We were in shock! I called the Dr. right away and unfortunately after some blood tests, we lost our baby at 7 weeks. I was crushed!!! But I was hopeful, if I was able to get pregnant naturally, that was a blessing on its own. I found out in October, that I was pregnant again. I am currently 24 weeks today...and nervous beyond belief. My anxiety of HELLP is kicking in, but I know that everything will be ok.
As you stated I know time is not on your side, but what about a break and lots of loving :) And then maybe a plan if that doesn't work. I know for myself...it was easier knowing I had one blessing and if that's all I got, then I was at least lucky enough to have him...and with less pressure on myself maybe my body could work better. I'm not trying to brag or anything. I want to give you hope and let you know that what you and your husband decide will be great. I was not going to give up on my fertility journey until someone told me "YOU CANNOT HAVE A BABY!" Keep giving yourself positive vibes, positive stressless love.
I also don't know if it would help, but I believe the reason I lost my second pregnancy was because I didn't have enough progesterone. During my son's pregnancy I took progesterone and now during this current pregnancy I have had to take progesterone and I also take baby aspirin. I wonder if progesterone would help your lining. It might be worth looking into and fighting your dr. for if you think it will help.
Baby Wishes to you! :)