This is an instructive post for those of you with an IGA deficiency that don't know what to do. I'm an older guy, and all my life have had recurrent respiratory infections, sore throat, virus, gram negative bacterial infections, swollen glands, and easily get sick with an average of four to six weeks between illnesses. When I got sick -- it came on fast -- in a matter of hours -- and before I started aggressive meds -- I would stay sick for weeks vs. days. When an immunologist first diagnosed the deficiency -- he recommended having antibiotics on hand ahead of time so I could take them whenever something started. That did change my life in the sense I could usually either stop something, or I would cut the severity substantially, as well as a "full" recovery time to a couple of weeks. I still got sick. But, now I had some control over it. It was a big difference. Of course -- I'm 70 now, and paid a price. The meds damaged my colon over time - and that will require surgery. However . . . there's good news at the end of the tunnel. I eventually had another condition that required me to see another immunologist -- and after treating me for several months and seeing I was always sick -- she recommended gamma globulin infusions (you do it yourself after a little training, and it's easy and almost totally painless). She said it could "change my life". Well . . . I wasn't real excited about infusions -- but decided to give it a try. I did it for a month, saw zero results -- and quit. I told her, and she said I needed to give it time. At least four months. And so, after some more discussion, I decided to give it a serious try. The amazing thing was . . . after two months with no illness . . . and now six months with no illness -- she was right -- it's changed my life! It's hard to believe that people (me especially) don't get sick all the time. It's an amazing change in my life -- and I'm blown away that nobody ever suggested it before. Of course -- getting approved for the gammaguard took about four months. But, I have an amazing doc -- and she pushed it through. I will be grateful all my life -- because it is awesome not being sick all the time. And FYI -- I've had zero reactions to the gammaguard, zero problems, and while it does take a full 30 minutes for the infusion time -- I do it twice a week -- and it works. Maybe it would work for you? Certainly -- worth looking into.
I've recently been diagnosed with IGA def I've omitted all gluten and dairy and I'm sick. My nutritionist told me that it's common to get sick after ommitting these foods while your body adjusts!!!So hard bacuse I'm a singer and a music teacher and my voice is totally compomised. It makes me so mad....SO, just eat bone broth and wait it out it out I guess! Anyone else????
Hi everyone!I’m 21 and was diagnosed with severe IGA deficiency when I was 19. It affects my life immensely (IV treatments bi weekly, lots of doctor’s appointments, ect.) I’m unable to do what normal 21 year olds go out and do. My body is very weak (extreme joint pain, fatigue, constantly sick due to a poor immune system) and I have major FOMO.I know I can’t be the only young woman going...