Hi, i know how you feel,had a bad bout last night just as i got tucked up in bed!! spent an hour in the toilet, felt bloody terrible. you are not alone!!

thanx hun, its good to hear that im not alone, but im bettin u wish i were lol.... Who wants to go through this every bleeding day!!!!!!
u have to laugh or we would for ever being crying lmao !!
hows u ?

Hey, glad you CAN vent--it never helps to keep the frustration in!!!

Wow, you sound like me. I ask myself the same freak'n questions all the freak'n time. I make myself stay at home a lot of times because I worry about my IBS acting up(most of the times it's already acting up). What can you do?

tell me about it.... my husband loves to go out dancing. we have been married for 3 years and have only gone dancing twice!!!! all because i am afraid to leave the house and wait in line to get in the club.... sometimes i hate myself so much... being 23 and not doing a thing.... i am seriously considering buying that porta potty i saw in sears to keep in my car. it seems that if i have a toilet near by i dont really get the need to go but if i know there is no toilet then of course i am pooping my pants... to the point where i made my husband stop on the freeway in LA!!!

I have thought of that. Now am wondering if Im really agoraphobic or just the IBS cuz thats the first thing I need to know or want to know how to get to!!

I think this IBS has me on the road to being agoraphobic. Everytime I think of going out I want to know exactly where the restrooms are. Then I worry about getting in. I don't go out fishing in a place that doesn't have restrooms & one day I only made it in the door. It was terrible. If I didn't have low blood sugar I wouldn't eat before I went out but that doesn't work all of the time either. I know if I go to a restaurant I have to be near a restroom for awhile & once is not always enough. I just think of traffic jams & forget going anywhere. And I need to get out. It is an awfull thing to have to put up with. I told my husband the only place I am comfortable is in the bedroom next to or on the pot. It's great isn't it?

i am defo agoraphopic now. afte years of workingathome becuasue of ibs i decided as i elt ok and a bit more confident ot go out to work just 2 days a week in a shop!! now i am feeling bad panic symptoms 2 days in advance of when i have to go ut to work and every day in work my stomach plays up really badly and i fell so humiliated. i cant not go as i need the money and i need to prove to myslef that i cant let it beat me or i will never do anything ever again. but its so hard to do when you have to be embarrassed infront of people. i am makin g myself go tommorrwo but im already anxious now. why whywhy cant i be ok. im fine in the house - but as soon as i have to be out or with company my body betrays me!!! ahhhhh. I AM NOT GIVIN IN.

i am defo agoraphopic now. afte years of workingathome becuasue of ibs i decided as i elt ok and a bit more confident ot go out to work just 2 days a week in a shop!! now i am feeling bad panic symptoms 2 days in advance of when i have to go ut to work and every day in work my stomach plays up really badly and i fell so humiliated. i cant not go as i need the money and i need to prove to myslef that i cant let it beat me or i will never do anything ever again. but its so hard to do when you have to be embarrassed infront of people. i am makin g myself go tommorrwo but im already anxious now. why whywhy cant i be ok. im fine in the house - but as soon as i have to be out or with company my body betrays me!!! ahhhhh. I AM NOT GIVIN IN.

WOW...you all sound like me and even though I don't have much to say or any advice i'm glad to see im not the only one. I really didnt know IBS controlled people the same way it does me. I hurt all the time and i really mean ALL the time, but when I try to put my head up and go out my IBS acts up bad and i end up right back in the house. I also have MRSA and everytime I have to take antibiotic, I end up on the couch with the heating pad til im done with the pills. I really want my life back...I want to go one week, or even one day without dealing with pain and watching what I eat...which hasnt been much besides bran and soup.
I wish us ALL the best of luck.

It sounds ridiculous but does anyone watch Ophra Winfrey? My friend said a DR. was on there not long ago saying there is help for us who suffer from this problem. She couldn't remember all he said. Something suppose to be new. It wasn't too long ago she saw it. I'd give anything to control this constant sitting on the pot. I have stayed inside so long it's a major problem to make myself go out & most of the time I back out. I have even less time to get to the bathroom. It has ruined my life.

I can't take much more of this. The Dr. says go out to help my awful depression. Everytime I think I will go out I am afraid I will not be able to find a restroom. It's happened to me twice when I just got in a door & twice I couldn't get to my own bathroom all of the way. I definitely know that is what is causing the agoraphobia now.
That has increased the depression & anxiety I am going through with my family. I have no way to get away for some peace or to shed some of the frustration of life. I am older. Is this what the last of my life will be sitting on the toilet or in bed? Every time we have another episode with the grandson I am worse & sore all over my body from tension. Since my Aunt passed away I have had a real down time. I am just getting over losing my brother. Now we have another crisis with my 25 yr. old niece. She married in England & you have to wait your turn for Drs. Her parent's are trying to get her over her to Mayo as they say in England she only has four months to live. She was helped here before but went back down hill over there. She is so weak it will be hard on her to even get here. This family has been through it.
This is why I do not want managed care in the U.S.