Hypothyroidism Support Group
Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...
Last time we did that - I started fainting due to low thyroid/low bp.
I'll have to make an "appointment" for end of nov or I'll be in physical hell for the entire holiday season....
Glad you figured something out!
It never ceases to amaze me how doctors can screw things up....even when we have history to show what works for us. (um...been there, done that with my doctor this year and my T3 dose)
Ironically, my doctor has her thyroid patients get labs 4 wks. after dose adjustments which we know is too soon.
In the "early days", I wanted to believe her protocol was right. Heck, if so, I'd heal faster.
I learned *that* one the hard way as well. (labs 4 wks. after a dose increase showed my FT4 (artificially) optimal so I didn't get another dose increase. Severe symptoms developed within a week and next labs showed the FT4 level much lower)
Thankfully, my doctor hasn't noticed that I wait 6 wks. (sometimes 6 1/2 wks.) after dose adjustments. I suspect this is the case because she sees me after 4 wks. the next time :)
Here are my optimal levels (no thyroid symptoms):
FreeT4 1.7 - 1.84 (.82-1.76) 94-109% of range
FreeT3 3.8 - 4.4 (2.0-4.4) 75-100% of range
My most recent labs:
FreeT4 1.58 (80% of range)
FreeT3 4.1 (87.5% of range)
The decrease in my FreeT4 level probably doesn't *look* to be all that much but, it represents a 14% decrease from the low end of my optimal range of levels.....and a 29% (!!!) decrease from the high end of my optimal range of levels.
That's a lot and why I had symptoms.
In the 3+ years I've been taking thyroid hormone replacement, have found that I need both the FT4/FT3 levels to fall within my comfort zone if I am to be free from thyroid symptoms.
The "Bible" of Internal Medicine, "Harrison's Principals of Internal Medicine" (14th Edition, Volume I, page 1970) states:
"Most hormones have such a broad range of plasma levels within the normal population. As a consequence, the level of a hormone in an individual may be halved or doubled and thus be abnormal for that person, but still may be within the "normal" range."
Basically, this means that each of us has his/her own optimal range of levels.....within the normal range. If our levels don't fall within this optimal range, we can have symptoms.
My doctor is an internist and I suspect she remembers this concept because she has referred to an "off" level of mine (such as the FT4 at 80% of range) as not being "normal for you" (me).
Glad you're normalized again.
I went and checked out these doctor beings you all are talking about, and since then I've gotten really sick.
God
I have found that every one of us is different. We must learn to listen to what our bodies are trying to tell us. We must then present this to what ever doctor we are dealing with. If that doc seems uncaring or uninterested, we need to find someone who is.
It's YOUR body. Please be concerned that it functions right. Get to know where your body needs to be. Not every one is in the "Norm" Most the time my body is in the "high" range for anything I suffer from.
I am not trying to say that the norm is not right for whoever. I am trying to say find the norm for your body. Work WITH the doc or find someone who will work WITH you. It took years, but I have finally found a group of docs who are willing to listen to what I have to say and make the appropriate adjustments. I know, I'm lucky.
IT'S YOUR BODY, FIGHT FOR YOUR RIGHTS. Don't just sit back and do what the docs say. Although they have studied and worked to get where they are, you are the one who is dealing with the situation!!
I have been away, so only now am I aware of my labs.My TSH is 1.1
My FT3 2.9
My FT4 below "norm" at 0.7
I am currently taking 60 mg of Armour 4 days a week. 75mgs 3 days a week.
He wants me to cut back to 60mgs 6 times a week now, as he believes I am taking too much..and is worried about osteoporosis.
He says my TSH is low enough.. I still don't feel that great..and I am disappointed, I so hoped he was different from my last endo who only paid attention to TSH.. Even though he's prepared to prescribe Armour..he's afraid of giving me too much.. "sigh"
SO very sorry to hear that your endo is proving clueless!
I must admit that I don't have too much faith in endos as a profession to treat my thyroid disease. The 3 I saw were obsessed with TSH and kept me horribly hypo.
Maybe you can find a better doctor by using one of the resources shared on this thread:
http://www.dailystrength.org/c/Hypothyroidism/forum/16741232-list-recommended-thyroid-drs
I was so hopeful, as my last endo was a nut quite truthfully, she would bristle at any question asked.. TSH was her religion.
This new guy seemed concered as to how I feel etc. Then most importantly he prescribed Armour..so I thought Eureka" I have found my Prince!!
Last visit..I told him I still didn't feel good..but he said "your TSH is just fine, that's what matters".. oh oh I have heard that before!
@ keeska
You had me howling with your suggestion :) I'm still scratching my head over my whacked-out thinking. Thanks so much for your support!
@vonpat
You know I empathize.
@Snippy
I find thyroid humor to be similar to some types of pregnancy humor lol There's no chance I'm pregnant so, I know any brain fog is due to my thyroid lol
@ Mary Turk
You read my mind but said things *much* better than I could. And, congratulations on getting yourself a good team of doctors - no easy task, that's for sure.
@missd
great minds think alike :)
But I must repeat, it is your body. Fight for it. Docs are only human. You should know as much as they do. Fight back. Fight for your rights. FIGHT