Hi
Wanted to let you know someone heard you and understands.
Regulating can take a long time, I think I am finally there and I'm at year 7 or 8. It can also vary summer to winter and as we age.
What's helping:
Coconut oil in my morning and evening tea/coffee for my hair and nails along with gummy biotin. Lots of vitamin b12 for energy.
Eating small meals 6 times a day to keep energy stable.
Taking some of my t3 in the afternoon (huge help!).
Resting, pacing myself and being my own best friend...
Hoping your vent helped you feel better!

Awww Mariposa I totally feel you!! I've been struggling a lot the last couple of days too - I know how you feel. Big hugs and just remember you'll get through this! We WILL feel better someday.

When I feel super yucky I try to find little things to do to pick me up emotionally (that don't involve a lot of effort, because I don't have it in me for effort). A bubble bath with candles, a good book, and wine. Or a movie night with my kids where we snuggle up together. Or a back rub from my husband...little things help sometimes.

I like the phrase "blood-draining fatigue". That actually encapsulates the feeling really well.

Thanks, Lovelies!

I just tried to go for a walk down by the Hudson - we have a gorgeous park here in Tribeca - and could barely waddle there and back.

I am fighting back tears because my life is so small these days and I will need to cancel two social occasions this weekend that I had been planning for months.

My Serious Desk Job is making a lot of demands on me today, I am growling at everyone, and I am pretty much "out of spoons." I need to do laundry tonight and I don't see how I will get up the energy.

But.

I do feel surrounded by your empathy and care.

I hope we all stay in touch once we start to feel better.

Thanks from my heart.
xoxo

Hang in there! I still have a day like that when I pushed myself too hard and the next day I feel like the sole of my shoe! Try and make a little of "me time" even if it includes your laundry.

Thanks! This was really horrible. It was all due to my functional medicine doctor not understanding that if he gave me supplements that increase adrenaline rather than increase cortisol, I am going to fall to pieces. If you add DHEA into the mix, which actively lowers cortisol, I am going to be human only in a restricted sense of the word. Might as well put me in hospice.

Just because something is labeled "adrenal support" does not mean it is appropriate for low cortisol.

I have to find another doctor. And with a $3,000 deductible, and with accumulated debt from my last year of medical adventures, I just can't afford to start a whole new round of testing and monitoring.

At this point, the best test is: "Do I feel like crap?" If yes, there is Something Wrong.....

I am going to start taking licorice supplements tonight because this is the only substance short of Cortef & its siblings that actually raises cortisol.

Wish me luck, Lovelies!!!

Yep its horrible. Been doing it 10 years.

Just keep in mind, it effects every process when the hormones arent there. ie neurotransmitters.

The one I think I struggle with most is dopamine, pleasure in old activities, motivation and reward. Not to be confused with norepinephrine as I have anxiety issues and already get way to much adrenalin. I suspect my Gaba is naturally low. Yet i keep taking serotonin drugs (shrugs shoulders).

A large part of it for me is I take opiates for back pain, which mess majorly with dopamine.

So give yourself a break, you have a chemical break down in your body. Thats NOT your fault and you are perfectly normal.

And yeah it sucks but the more you learn to overcome it.

I know mine is a gut problem. I just dont know how to fix it as Ive tried all the holistic methods.

I have zero family, Ive disowned toxic relationships and Ive lost a lot along the way. I try to make my own family best I can being bed bound a lot of the time.

Chin up and box on, you can do this and you can find love and peace no matter where life leads you, to the top of the corporate chain or a life struggling to beat illness, if thats the worst case, there is love and happiness and support everywhere.

Ugh. So so sorry to hear you struggling. Sending you every bit of healing vibes and well wishes that I can muster into the universe. (((Hugs)))

54Mariiposa so sorry to hear you are suffering so bad i feel at times the same way you do. I am single male older play golf but when hot don't even try i have decided today that i can't sneak a dog into my condo but i could get away with a cat so i think i am going to get a pet like a cat to help me thru or take my mind off this whole crisis. But i hope someday to be feeling well again and hope you feel good I too have gained weight 15 lbs and have lost desire and energy to do some things i try to force myself to go out for breakfast with a group of guys in the morning and also take a walk 2-3 miles later but man it wears on me. Mentally and physically good luck to you

Mariposa, so sorry you are having such a rough and tough time.
You can come vent here any time, we understand. You are so right, hardly anyone else will understand that fatigue and other crap we have to deal with. Hope you get some medical help that works for you soon.
((((Huge hugs))))

Thanks EVERYONE!!!! I am so grateful for ALL of you!!!! xoxoxoxo

Gotta stick together.

The reality is hahimotos is a very mis understood disease and due to lack of medical insight on such a common disease people have ventured of looking for holistical healing powers and spreading opinion and anecdotal evidence as fact.

so its very hard to know whats real and whats not.

ive never felt better in 10 years and i doubt i ever will. but ive come to the acceptance of this. thats the best step ive taken.

Thanks, HH! I have been a Fighter all my life up until now. The concept of Acceptance/Surrender does not come naturally to me. But - if I think of this experience as being a time to stretch and learn and let go..... Maybe it will help.

xo

so much love to you, mariposa. i feel you, you're not alone.

acceptance isnt giving up, its just accepting the hear and now and working with what ya got.

i think i got so wrapped up in feeling sick and listening to holistic dogma that i forgot to live.

i have hashis, sjogrens, disc degeneration. constant chronic pain. i accept that now. now that i accept it, when those symptoms occur i dont go all obsessive about trying to fix it immediately. i just go easy on myself. even with illness life is beautiful.