Hypothyroidism Support Group

Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...

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8 yrs Post RAI for Graves and Diet

mnov72
mnov72
Hi All,
I really hope everyone is doing well! It's been a while since I have been on and have a question. There is just so much conflicting info. I am 8 yrs post RAI for Graves and am wondering what I should and should not be eating. I have read, we should have some iodine and some goitrogenic foods (I am hypo now) but then you read if you are on meds, to avoid other things but it all only seems to pertain to folks who have not yet been treated for either Hashi/Graves. I did try searching on here, however under the graves site I only saw recommendations for people recently diagnosed who still have a thyroid and for Hashis.
Hope I made sense.
Appreciate any feedback!
Thanks
Michelle
cd3764
cd3764
Goitrogens tend to be healthy foods and, just as with any type of thyroid disease, it's best to eat them in consistent amounts.

Iodine in the form of iodized salt and that which is in processed foods is best kept to a minimum since too much iodine can wreak havoc with thyroid hormone levels.

It's not so much what type of thyroid disease we have that influences these things but, the effect these things can have on our levels.

Consistency is key with all types of thyroid disease.
bm55
bm55
Hi Michelle, I am 8 years post rai graves also. Ditto for what CD said, and also must watch out and not eat too much soyfood. A little is okay now and then.

I use the uniodized sea salt.
mmztcass
mmztcass
There was a gal at another thyroid board who also was Post RAI a few years (now I guess she's at the 10 year mark). But any way, she found out that she continued to have the same problems with the certain foods/drinks prior to her RAI. She had to still avoid. On top of this, she also had some new triggers to deal with to avoid as well.

I suggest you get a small notebook and record what you consume and make note of any reactions.

Some people with RAIs are lucky and do fine afterwards with no problems and then there a few who are not with continuing to do even more poorly. There's no way of knowing who will do great and who will not.

The key here also, is to be as proactive with thyroid disease then it'll be easier to deal with anything that should come up.

{{{hugs}}}
mmztcass
mmztcass
There was a gal at another thyroid board who also was Post RAI a few years (now I guess she's at the 10 year mark). But any way, she found out that she continued to have the same problems with the certain foods/drinks prior to her RAI. She had to still avoid. On top of this, she also had some new triggers to deal with to avoid as well.

I suggest you get a small notebook and record what you consume and make note of any reactions.

Some people with RAIs are lucky and do fine afterwards with no problems and then there a few who are not with continuing to do even more poorly. There's no way of knowing who will do great and who will not.

The key here also, is to be as proactive with thyroid disease then it'll be easier to deal with anything that should come up.

{{{hugs}}}
mmztcass
mmztcass
There was a gal at another thyroid board who also was Post RAI a few years (now I guess she's at the 10 year mark). But any way, she found out that she continued to have the same problems with the certain foods/drinks prior to her RAI. She had to still avoid. On top of this, she also had some new triggers to deal with to avoid as well.

I suggest you get a small notebook and record what you consume and make note of any reactions.

Some people with RAIs are lucky and do fine afterwards with no problems and then there a few who are not with continuing to do even more poorly. There's no way of knowing who will do great and who will not.

The key here also, is to be as proactive with thyroid disease then it'll be easier to deal with anything that should come up.

{{{hugs}}}
mmztcass
mmztcass
There was a gal at another thyroid board who also was Post RAI a few years (now I guess she's at the 10 year mark). But any way, she found out that she continued to have the same problems with the certain foods/drinks prior to her RAI. She had to still avoid. On top of this, she also had some new triggers to deal with to avoid as well.

I suggest you get a small notebook and record what you consume and make note of any reactions.

Some people with RAIs are lucky and do fine afterwards with no problems and then there a few who are not with continuing to do even more poorly. There's no way of knowing who will do great and who will not.

The key here also, is to be as proactive with thyroid disease then it'll be easier to deal with anything that should come up.

{{{hugs}}}
mmztcass
mmztcass
There was a gal at another thyroid board who also was Post RAI a few years (now I guess she's at the 10 year mark). But any way, she found out that she continued to have the same problems with the certain foods/drinks prior to her RAI. She had to still avoid. On top of this, she also had some new triggers to deal with to avoid as well.

I suggest you get a small notebook and record what you consume and make note of any reactions.

Some people with RAIs are lucky and do fine afterwards with no problems and then there a few who are not with continuing to do even more poorly. There's no way of knowing who will do great and who will not.

The key here also, is to be as proactive with thyroid disease then it'll be easier to deal with anything that should come up.

{{{hugs}}}
mnov72
mnov72
Thanks all for your replies! The info changes all the time and I have realized the best advice is from those who have lived it! My doc yesterday shot down all the supplements I take that they r not necessary. What then do post RAI patients take? I know I need something ") oh I have to post an article thoughanybofbu may have read it . The endo society is starting to agree that combo T4/T3 might be a better therapy especially for those who lost their glad to TT OT RAI. I'll post as soon as I can find it again.
Cheers
bm55
bm55
Michelle, Is your doctor focusing on your Ft4 and Ft3?
mnov72
mnov72
Hi bm55
Unfortunately my doctor could care less about FT4 and FT3. He said they are not relevant. He is only concerned with tsh. My ft4 is 1.8 ( range up to 1.7) ft3 is 2,8 (range 2.3-4.4) he also said again diet has nothing to do with it to stop reading the Internet . So I am finally going to see an ND!
bm55
bm55
That is good you are going to see an ND. Hopefully your new doc will get you on some T3, as I can see you need it.

You must be feeling quite awful with that low of an Ft3. Good luck to you.
mnov72
mnov72
Your absolutely right. Def not feeling right! What's bizarre is I have both hyper and hypo symptoms. Anxiety jitters losing weight (not a lot but 4lbs on me is a lot) muscle aches hair loss... No nails skin so dry bla bla bla. What I found interesting sice I have been chewing my synthroid the last month to two months my tsh dropped from 4 to 1. Def something to the way this stuff is absorbed but I suppose with all storage hormone and not too much active I can have the combo symptoms. What are ur thoughts?

Thanks
Michelle
bm55
bm55
Wow I would say your T4 was absorbed better by chewing.


I am on a group called thyroidless@yahoogroups.com. A lot of them have no thyroid and are taking natural thyroid hormones.

There is a lady there named Darla, and she is very knowledgeable. They can also give you names of doctors that will check your Ft4 and Ft3, and put you on naturethroid, Armour etc

I see that your Ft4 is way up there, but you are not converting to T3.