Hypothyroidism Support Group
Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...

DSRM
I have been diagnosed with Lupus for 14 years now and I still don't completely understand it. When my blood test were normal and I still had pain, fatigue and brain fog i was diagnosed with fibromyalgia. That happened 2 years ago and I had been taking 60mg of cymbalta. Very little relief and I still complained of the fatigue. I am 30 and I can't do much of anything that involves any sort of stamina or endurance. At times just walking is a chore. In the last 3 months or so I was diagnosed with hypothyroidism. i have been taking Armor Thyroid and incrementally increasing the dose as directed by my doc (not an Endo she's a OB/GYN that specialized in Hormones). I was starting to feel better with a bit more energy, less pain, etc. at least until recently. I have had a rough two weeks of work and I dont know if it was the stress or what but I have been exhausted and the pain is creeping in. My confusion is I dont know what I really have and if I do have all of the above, which issue is causing the symptom of the day. As you all can imagine, I dont have much trust in docs. I've be diagnosed, misdiagnosed, re-diagnosed and newly diagnosed with more things than i can remember. can anyone relate?
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You should post your most recent thyroid labs for the more knowledgable members to comment on. Be sure to include the range. Do you have TSH, FT3, FT4???
Glad you're here, but sorry you're dealing with all of this.
I have lupus....AND hypo thyroidism (among other things).
I can tell you this: Hypothyroidism and Lupus go together many, many times because they are BOTH auto immune diseases. Chances are - especially with Lupus - if you have ONE AI disease you will invariably get another. Treating each one optimally, is extremely important.
Here's the catch 22 that comes with my set of AI issues:
Hypothyroidism flares up - can't get out of bed, want to sleep all the time, and my joints/pain gets much worse. Thinking becomes impossible and then, of course, my Lupus flares.
OR The converse happens:
Lupus flares up, can't function, thyroid levels go off the charts again....and I can't function times TWO.
I'm also not surprised that you were diagnosed with fibromyalgia - you're bound to be hurting all over with both of these diseases (I know I do).
In my experience - fibromyalgia meds did NOT help me. Cymbalta, Lyrica, etc - NONE of them helped me at all. All I got was another subset of side affects.
What will help you ask?
Finding a good rheumatologist to manage your Lupus.
Finding a good doctor (your ob/gyn sounds ok) to manage your hypo thyroidism.
De-stressing your life
Eating well
Resting
Staying physically active when possible as much as possible
This is a HARD balancing act. I know....I live it every day.
However, there is hope:
Your hypo thyroidism can get worse before it gets better....that's not uncommon. ...especially with armour.
It works something like this: T3 levels go up, T4 levels come down....but all that really means is that you need a new set of tests and probably a dosage increase. I'd work that angle first...while seeking treatment for Lupus - make sure you make your rheumy aware of your double condition.
The tests you need done are the following:
TSH
FREE T3
FREE T4
Once you have those...come back here and someone will help you interpret them.
That's really the only thing that's going to tell you what's going on with your thyroid condition.
here's some info:
http://thyroid.about.com/cs/basics_starthere/a/20secrets.htm
With this "double curse" things can get VERY ugly VERY quickly - so don't wait. Get an appt today for tests.
I'm flaring right now with bad fatigue and brain fog.i cant figure out which probem it is and dont even know which dr to see (if any).
I was sent to a back surgeon last summer for cervical disk disease(forgot that one)...and he said i have nerve damage on my left side.i asked him "Is it from the herniated disk?" and he said "I honestly dont know what its from because you have alot going on" is frustrating!!
Alot of these diseases have overlapping symptoms and also can trigger each other.The thyroid can increase fibro pain and that can increase depression being in pain all the time.
Instead, I pushed for optimal thyroid treatment and found that the other issues disappeared - that told me my thyroid levels were to blame.
I'm not saying the thyroid causes *every* problem but, it makes sense to me to optimize thyroid levels and see what's left.
My research has shown that chronic fatigue and fibro didn't come into existence as diagnoses until after the invention of the TSH test. There's a school of thought that CFS and fibro are actually manifestations of undiagnosed/improperly treated hypothyroidism.
In his book "The Thyroid Solution", endo Ridha Arem writes about anxiety and/or depression being a manifestation of sub-optimal FreeT3 levels.
According to thyroid textbooks, healthy people have FreeT4 levels near the high end of the range and FreeT3 levels above mid-range.
DSRM - you may know that Armour is made from porcine thyroid. Well, porcine thyroid has a larger proportion of T3 than T4 compared to human thyroid.
This means that people taking Armour will have a FreeT3 level that is proportionately higher in the range than the FreeT4 level.
Some people are fine with this but, many find the need to add T4 and have both meds adjusted until their levels are similar to those of healthy people.
Please know that, until both the FreeT4 *and* FreeT3 levels have been optimized, we can have symptoms.
Being close isn't good enough. It's like being pregnant - we either are pregnant or we're not.
I will gladly show you how to interpret your thyroid labs - please feel free to post your most recent results here with the ranges.
(different labs use different ranges so your results can only be properly interpreted within the context of your lab's ranges).
Let's get your thyroid optimized - it can only help.