Hypochondria Support Group
Hypochondria refers to excessive worry about having a serious illness. Hypochondria is often characterized by fears that minor bodily symptoms may indicate a serious illness, constant self-examination and self-diagnosis, and a preoccupation with one's body. Many individuals with hypochondriasis express doubt and disbelief in the doctors' diagnosis.
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I am new to the board and have been looking for a place to get some advice on dealing with a loved one with hypochondria. I'm excited to see the active community that's here.
My wife, whom I love dearly, has developed this disorder over the last few years. Her story is likely a familiar one. Our first child caught a staph infection in the hospital during birth (he's fine). That began the obsession over cleanliness and constant worries over germs. Prior to that, there were no signs of hypochondria. Last year her father passed away from throat cancer. It developed undetected through a series of misdiagnoses and took him down quickly by the time it was caught.
She has recently been diagnosed with anxiety, which I've found is often closely linked to hypochondria - either as a cause or effect. She is constantly aware of symptoms she's experiencing, whether it be something simple like headaches or stomach pain, or something broader like backaches or chills. She constantly self-diagnoses herself by doing internet research. She saves Dr. Oz episodes on our DVR and refuses to delete them, even after watching them. She's constantly tired, constantly getting tests done, and regularly going to the doctor. And, of course, she's constantly complaining to me.
I try to be sensitive but after going through this for several years, I know that she's feeding the cycle. Psychological problems lead to physical problems and the snowball grows. She gets offended if I don't validate her aches and pains with what she considers an appropriate level of concern. As I saw another poster say, and I'm paraphrasing, "when I am proven right, then he'll be sorry." She mistakes my pragmatism with apathy. But when I express my genuine concern that she may be contributing to her problems by focusing on them and worrying constantly, I am met with defensiveness at best and anger at worst. If I even mention the "H" word, then I'm suggesting that what she's feeling is all in her mind.
I need a new approach. I love her and don't want to see her miserable like this. It's really hurting our relationship too. She's never happy, which makes it difficult for me to be happy. And when I'm not happy, I am less patient and it spins out of control. Has anyone here experienced this? I have to assume that a normal part of hypochondria is a reluctance to admit that you have it. Seems like part of the definition. How did you come to realize the truth? How can I as a partner be more supportive without feeding irrational fear?
I'm not completely opposed to medication but I generally feel that it's a band-aid solution to a bigger problem. Please nobody take offense to that. I haven't gone through this - I know that. Anyway, if there's medication that can help, I'm reluctant but open to the possibility. I don't want her to become dependent on it in order to be normal though. I'm hoping there are alternative treatment methods someone can suggest.
Any help, suggestions, or words of encouragement would be greatly appreciated.
My wife, whom I love dearly, has developed this disorder over the last few years. Her story is likely a familiar one. Our first child caught a staph infection in the hospital during birth (he's fine). That began the obsession over cleanliness and constant worries over germs. Prior to that, there were no signs of hypochondria. Last year her father passed away from throat cancer. It developed undetected through a series of misdiagnoses and took him down quickly by the time it was caught.
She has recently been diagnosed with anxiety, which I've found is often closely linked to hypochondria - either as a cause or effect. She is constantly aware of symptoms she's experiencing, whether it be something simple like headaches or stomach pain, or something broader like backaches or chills. She constantly self-diagnoses herself by doing internet research. She saves Dr. Oz episodes on our DVR and refuses to delete them, even after watching them. She's constantly tired, constantly getting tests done, and regularly going to the doctor. And, of course, she's constantly complaining to me.
I try to be sensitive but after going through this for several years, I know that she's feeding the cycle. Psychological problems lead to physical problems and the snowball grows. She gets offended if I don't validate her aches and pains with what she considers an appropriate level of concern. As I saw another poster say, and I'm paraphrasing, "when I am proven right, then he'll be sorry." She mistakes my pragmatism with apathy. But when I express my genuine concern that she may be contributing to her problems by focusing on them and worrying constantly, I am met with defensiveness at best and anger at worst. If I even mention the "H" word, then I'm suggesting that what she's feeling is all in her mind.
I need a new approach. I love her and don't want to see her miserable like this. It's really hurting our relationship too. She's never happy, which makes it difficult for me to be happy. And when I'm not happy, I am less patient and it spins out of control. Has anyone here experienced this? I have to assume that a normal part of hypochondria is a reluctance to admit that you have it. Seems like part of the definition. How did you come to realize the truth? How can I as a partner be more supportive without feeding irrational fear?
I'm not completely opposed to medication but I generally feel that it's a band-aid solution to a bigger problem. Please nobody take offense to that. I haven't gone through this - I know that. Anyway, if there's medication that can help, I'm reluctant but open to the possibility. I don't want her to become dependent on it in order to be normal though. I'm hoping there are alternative treatment methods someone can suggest.
Any help, suggestions, or words of encouragement would be greatly appreciated.
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The problem with this is that she interprets this as being patronizing and judgmental. Her defense is, "well I've tried that and it doesn't work so I don't know what you want me to do... I mean I don't like being stressed and worried all the time and I can't help how I feel." I'm not trying to tell her it's an easy fix - I just want her to work on it.
So keep in mind, she has not yet come to grips with her hypochondria. She is willing to admit that she has anxiety because it's an official medical problem that she can diagnose herself with, get medication for, and temporarily feel better about knowing why she's feeling badly. Hypochondria has a different stigma. You're delusional, dishonest, and a little crazy... Not that I believe this, understand. But that's the stigma. So I have to tread lightly. If she were like so many on this board, knowing that she is prone to hypochondria, then my approach would work better. But since she wholly believes that she's got serious problems, my approach isn't working.
My hope is that since anyone on this board has presumably already admitted that they have this disorder, and probably also once believed they didn't, that someone can walk me through how to tailor my approach to someone who's still in that denial stage.
I was willing to admit to my anxiety but not being a hypochondriac, because I was afraid that if I did no one would believe me ever again when something could be wrong. I didn't want and still don't want people to assume that it is all in my head, because we are all going to die from something someday. No one wants to be labeled as crazy and untrustworthy or ignored when they are concerned. That is some of the reasons it took me so long to admit there might be a chance I could be one. During my more rational moments I saw the pattern and agreed with my husband at least in my head, but when I was in the grips of it at it's worst I couldn't see what my husband was saying. Everything that my husband said to me was heard through my anxiety filter, basically it felt like he didn't understand what I was going through.
So How did I finally admit to it. Like I said I did see a pattern and that helped but I also ended up taking the medication my doctor had been urging me to for awhile. I was so lost to my anxiety I could not think rationally anymore, I could with everyday problems but not about my illness. The medication helped me to escape being trapped in my head, because until I calmed down there was no way I was going to be able to listen to anyone. Also it help me get more sleep, which I don't know about your wife but sleep is the first thing that goes when my anxiety amps up. And who can thank rationally when your so tired. I also did the things that people on this board and on the anxiety one had recommened. I started exercising (trust me I thought this advice was full of it when I first heard it) and at first it really did nothing for me, but eventually it did help. I also cut out all caffiene and tried to eat better. I think these things work because it gives us something to control, when our lives seem so out of control. I tend to only take the medication for the shortest time possible and then my doctor and I wean myself off. And I don't always need to start it sometimes I can talk myself down without it, but when I really get going I need something outside my self to help me.
Another thing that has helped me this time around is I have stopped looking up my symptoms on the internet, because they give you every thing it could every possibly be from indigestion to ovraian cancer. How my mind works is I tend to ignore the more benign things and move on to the deadly, must take action now types of medical problems. I don't watch doctor Oz because I could tell from the comercials that it would suck me in and drive me crazy. I am not saying that I don't do what I should, if something is wrong I do still go to the doctor and tell them what is wrong. And if I am obsessing over something, I actually tell them what I am obessing over, that way they can ether test me for it or reassure me that I don't have because i don't have the correct symptoms.
I have to go and I am not sure how much this my have helped but in the end your wife is the one who needs to come to the realization, that she has an issue with this. If you have insurance maybe she could speak to someone about her anxiety since she admits to having that. I am glad you are so supportive, just keep trying to be there for her and find a support group for yourself so you can vent. Thank you for being willing to come on here to try to find help for your wife and yourself. I hope this helped at least a little. -Anne-
It took my years and a psychiatrist to help me understand that I was born this way.
I never wanted to use medication, but I decided I had no other option. My husband, like you, tried many different tactics on how to deal with me. He now knows not to fuel the fire. If I start panicking over symptoms, he talks me down. Reminds me how healthy I am, etc..
Now on to meds....it has broken the OCD aspect of hypochondria. I have read many books, and meds were my best option. I did yoga, exercise, therapy, etc...those were my band aids.
The worst part of hypochondria is that we obsess, we are convinced that we are dying and that something horrible is going to happen. Please get her to a psychiatrist, convince her with the best of your ability.
I am so sorry to hear about your wife. I myself suffer from hypochondriasis and I can tell you it is a miserable disease. It is great to see you seeking help for her. I am in a long term relationship that has had many ups and down over the years due to my anxiety. The best piece of advice I can give you is to be as patient with her as possible. People with the disease (including myself) are extremely sensitive to how other people perceive us, especially our loved ones. It is extremely important to support her and listen to her fears (no matter how silly they seem), and dont just dismiss her thoughts. As for treatment, cognitive behavior therapy has done WONDERS for people with the disease. Good luck and please feel free to contact me with any more questions.
Several years ago before I met him, he had a real medical episode where his uvula swelled and he spent several days in the ICU. The doctors were not sure what caused it, but he recovered fine and he was given an Epi-pen prescription in case it was an obscure allergy. Since then, my husband has had 3 episodes of what I believe to be hypochondria and what he believes to be flare ups of whatever this allergy is. The problem is he has no symptoms during these last 3 times. The last two have been the most problematic and frustrating for me, which is what leads me to this board. This past time was after a destination wedding as we were traveling back home. He was seeming to fall asleep in line, constantly checking his lymph nodes for swelling, coughing. We ran into some people we knew during this time and he perked right up and was his normal self, then after they left he went right back to this behavior. He thought he was going to throw up, pass out, etc. He made sure that I knew where his epi-pen was and he wanted me to keep an eye on him in case something happened. I am going back and forth between panicking that something is seriously wrong, and anger at him for overexagerating what is probably just dehydration from travel and an open bar wedding. He was fine as soon as we got home and he got a good night's sleep. The time before was during our honeymoon, in which he was convinced his throat was swollen, refused to eat anything and had to rush to the emergency room. After that, he has seen various doctors, had numerous tests all of which come back with nothing. The common denominators I see are traveling and drinking. I think the original medical scare gave him anxiety and whenever he is out of his element/dehydrated, he immediately thinks he is having this issue again.
The whole time these episodes are happening, he feels awful and keeps apologizing. He has also admitted a few times that it might be in his head. Meanwhile, I am trying to be supportive but I still feel very angry (mostly because it happens at the end of a vacation and ruins that last few days). I also can't help but feel like this is attention-seeking behavior - every time I ignore it the symptoms and what he tells me gets more and more dramatic.
I am struggling because I am 99% sure it is hypochondria, but God forbid something happens and I didn't take it seriously enough.
My first step is for him/us to stop the drinking. We are in our late twenties and I think its time we abandon our college ways. The next step (and I don't know if he would agree to this) would be to talk to someone about it.
Not sure what I'm hoping to get out of this, but any advice or similar stories would be appreciated.
I am so beside myself feeling alone with dealing with this. The worst part is, there is no suggesting to her that maybe its anxiety driven- everything has some weird cause that she researched on the internet.
Her family recognises her condition and they sympathize with me, but I feel like I am on my own dealing with this. I feel like I dont have many friends anymore, possibly because of this. Her health problems and Other peoples health problems are constant topic with other family memebers and friends. To the point where it drives people away. She is just getting to the level of understanding that other people dont want to hear all about her "health problems" ad-nausem, and she is learning in social situations to not talk about it. However, I feel like I am taking the brunt of it and hope at some point she realizes that maybe its all anxiety....
Just venting. Dont know what else to do.
Up until about a year ago, I was a reasonably normal person, so, much like your family members, I am not really an idiot. What may be a bit different is that I am fully aware that its all in my head, at least the probability of that is extremely high. This doesnt stop me from having a really strong urge to get a head MRI with contrast right now, because Ive had a headache for several days. I am actually writing this post in part to get my mind off of it. I dont want to describe what its like to be a hypochondriac (there is a really hilarious and insightful book A Hypochondriacs Guide to Life. And Death by Gene Weingarten, which I totally recommend). I want to tell you what has worked on me, because my loved ones are at a loss, just like you. My shrink too had only marginal success, unfortunately.
So heres what works: I have a friend with a long history of severe depression. She gets the idea of this not being done on purpose, or because someone is being stupid. It is completely irrational and needs to be dealt with (at least in my case) by appealing to logic, generally, that same logic that leads to panic in the first place. She will spend hours with me just discussing and researching things online, looking up PubMed articles, finding statistics, symptom-to-disease correlations, pointing out my lack of common sense, appealing to the fact that Ive had those same symptoms many times before, etc, etc. All of this is done rather relentlessly, until I just give up. It works. I can only imagine the toll it takes on my friend, but it works. Sometimes oh, you are gonna be fine just doesnt work, you see. We dont do this, because we are attention whores. What works is someone secretly becoming a cognitive therapist of sorts. I know its extremely hard and way too much to ask, but it does work on me.
Any person prone to worry and panic tends to correlate. You read online that symptom X is one of the symptoms of some horrible disease. Never mind that it is also a symptom of many other things; the power of suggestion is incredibly high for us, crazy panicky people. I will go on WebMD, enter my symptoms, get a list of possible conditions, and, drumroll, scroll it down until I find some kind of cancer. Dr Oz stuff is even worse, that show uses the whole fear tactic by pedaling impending death in a way that may make a normal person buy useless crap and read mostly useless books, but is a nightmare for a hypochondriac. Try to convince your loved ones to at least stop watching that garbage, because, for one, it is not medical advice. You can find the show website with its legal disclaimer and just show it to your loved ones. If they feel that constant worry is making them more prudent, stopping to watch a show marketed as entertainment isnt prudent. I know this must be hard, because this Dr Oz fella is like the family doctor by now, but just try and pretend to actually buy this panic = prudency = control crap we unintentionally pull on you. Also, seeing a shrink is a very good idea, as long as you find a decent match. This last one doesnt sound like much of an advice, especially if your loved ones are convinced that their panic is warranted, but just try. You may try suggesting to your family doctor to mention this option next time theres a much needed visit to discuss deadly symptoms. I once asked my shrink if this pattern will ever result in missing a real health problem. She said: Given what I know about you? No way in hell.
Good luck!
I love her dearly but can not carry on with being ignored every evening, or shouted at because I'm not seeing a doctor.