Hyperparathyroidism Support Group
Hyperparathyroidism is overactivity of the parathyroid glands resulting in excess production of parathyroid hormone (PTH). Increased PTH consequently leads to increased serum calcium (hypercalcemia) due to 1) increased bone resorption, allowing flow of calcium from bone to blood, 2) reduces renal clearance of calcium, and 3) increases intestinal calcium absorption.
Does this sound familiar?
I had wanted to find out if perhaps it was an allergy, but referral to allergist didn't really work out as no allergy testing was done. Allergist said perhaps linked to auto immune and needed thyroid testing done but of course some mix=up between lab or gp and never happened. Waited 18 months for that allergy appointment. and then another few months just to hear no test done when blood was drawn.
No wonder people rarely get a diagnosis or treatment.
Sorry usually positive but really frustrated lately, does this never end!
I'm sorry you weren't able to get the allergy testing done. I went to an allergist and had the scratch testing done. I found out all of my allergies that way. The more severe the reaction the more severe the allergy. Could you get the scratch testing done? Does your child have asthma? I'm asthmatic too. My allergies make my asthma worse.
I hope you are able to get allergy testing done soon and will be able to have a diagnosis made! No need to apologize for venting your frustrations, it's understandable! It's very frustrating. I don't think it's fair that we have to suffer because doctors wait to do testing, begin treatment, etc..!!!!
I remember many people saying how young I was to have hyperparathyroidism. I couldn't imagine having a child with it! Reading the effects really scare me too.
It is really disheartening when doctors don't seem to understand the importance of treating my hyperparathyroidism early. When I was diagnosed I already had had kidney stones and developed osteoporosis! I will keep you in my thoughts. I hope that you will be able to find the proper doctors who will act in your child's best interest instead of constantly showing their incompetence.