Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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tangerinebear 05/25/2011

Hello,
Elisa had her arm act up yesterday and want to know when you all flare in an area do you feel more tired and fatigued? She surely looks like it....Wish I had a chrystal ball to get her to feel better..... Her arm is alot better this morning. I put manuka honey, aloe vera gel, bactroban and
zinc oxide diaper cream on it and it is a heck of a lot better this morning.
Yesterday was ready to take her to the ER......
tangerinebear xo

tangerinebear 05/25/2011

the end of my topic I did not spell tired ....the t means tired gang sorry

deleted_user 05/25/2011

Yes maam.... I know when I was having flare ups, I would be exhausted because of the constant pain. It does wear you out!

Colleenie 05/25/2011

You are such a good mom. How do you like the manuka honey?

deleted_user 05/26/2011

I agree, you are a very good mom! I feel extra tired whenever I my immune system is fighting off something, whether that is a cold or a flare up.
Also, I have never tried Diaper rash cream/ Zinc oxide on a flare up, but I do know a good diaper rash cream! The Canus 'lil goats' goat soap brand diaper rash cream has a very high (40%) Zinc oxide content compared to other common brands (penatin etc) are around 18%.
http://www.canusgoatsmilk.com/final_home.html

deleted_user 05/26/2011

Pain, as we all need to remember, when it becomes intense or chronic, is a disease in and of itself. That is why it always needs to be treated in some way. It is a constant drain on the entire body, it's systems, it's functions and enduring it or fighting it, is exhausting.

Sleep at these times is crucial (if you are able to get comfortable enough to sleep and a good doctor should be able to help with this.) because it is during sleep that the body does much of it's healing and energy renewal.
So feeling tired and sleeping a great deal during a pain flare up is not at all unusual and, in fact, can be good. It is our body's way of telling us: "Look, you've had it. You NEED rest." And we should always listen to our bodies.
I am so terribly sorry you're daughter must go through this hell. How lucky she is to have you. All Blessings to You Both. Jean

tangerinebear 05/26/2011

When she is having a flare I let her rest and she loves to color princess pictures that I copy off of the net. She is 17 has Downs and when i ask her what she wants to be when she grows up she says she wants to be a princess. I tell her that she already is a princess in my book....Thanks Ladies for all of the advice. God bless you all and maybe some day this dreaded disease can have more answers then what the medical community is giving us! tangerinebear xo

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