Hi there everyone here! PsychDoc07 I am prescribed two pain killers by my VA HS Disease. They are Naproxen, and Percocet. I have to take both. The Naproxen is mainly for inflammation, and Percocet for the obvious pain. I have taken Tramadol, (bad news there). Nothing seems to work 100%. I hurt when I walk, and buy clothes too large so they are loose fitting. Tumeric was a joke. My life too, really isn't all that good either. Guess the aforementioned goes with HS Disease. Beware of some on here that say there is a cure, and push holistic, herbal medicines. As you know there isn't a cure. I get depressed as well. My life is pretty much in this condo here. I pray, and believe in God; being Catholic I know my suffering helps me get closer to Jesus Christ. If your a Christian know the He loves is still.

Sorry you are in so much pain! I would recommend seeing a doctor. If you are in that much pain and plus trying to take of kids. The doctor might be able to relieve your pain. Having HS is awful. I have a kiddo too. Yes, there is no cure for HS. There are medicines to help for short term, but aren't long term help. Naproxen does help for nerve pain! Tramadol doesn't help not strong enough for me. I was in so much pain had to go to the er and get a morphine shot. Hibiclens does work but if you can sit in a bath with hot water as hot as you can stand it and sit for 15-20 mins 2 times a day. That might help relieve so pain if it trying to pop.

Vinegar baths help me a lot with the pain when I have a flare. Add 1 cup of plain white vinegar to a tub full of warm water (add more if you have an overlarge soaking tub). Soak the affected areas for at least 30 minutes. Pat dry when you get out. The warm water helps soothe, the vinegar helps things dry out (boils get smaller and pain subsides)and it kills germs.

Have you tried any of the elimination diets or the Autoimmune Protocol Diet (AIP) to try to identify a potential food trigger? I put it off for years. I was so sure the doctors and medicine had the answer for HS. When I couldn't take it anymore I did a modified version of AIP and figured out my trigger foods are ones that contain wheat gluten. No more wheat based foods for me, but at the same time HS flares are now a rarity (unless I get glutened by accident). I've eaten a ton of wheat based products my whole life without any problem until a number of years ago when the HS started. It took another 3 years before I realized modern medicine did not have the answer. If you haven't tried AIP (or a modified version), its worth a try. The worst that can happen is things stay the same. The most commonly reported food triggers are nightshades (potatoes, tomatoes, peppers, paprika, tobacco), wheat gluten (breads, pasta, pizza crust, anything with wheat barley or rye products in them), dairy (milk, cheese, butter, yogurt, etc), and nuts.

Good luck!

I wrote my suggestions for pain relief in the post "This is so painful" reply #6. Please look it up. I will repeat it again here but remember I am not a doctor so please run it thru your doctor/s. To stop the pain one way I know is to make the cyst pop on its own. Don't use a knife or a pin or a needle. One way to get it to pop on its own is to use an ultra violet penlight found in a Leak Detection Kit found in an auto supply shop. Don't shine the light into your eyes. Put the penlight right over the cyst and then put the light on for 5 to 10 minutes. Your cyst should pop within 24 hours. Do not use the penlight again for 24 hours. If the cyst has not popped within the first 24 hours, use the light again the next day for 5 to 10 minutes. It should pop after the second 24 hours. When it pops, clean the area and put an antibiotic cream and a clean bandage.

Please let us know if this works for you. It works for my son and we could help others. We don't use pain killer pills as once the cyst pops on it own, the pain is very much lessened.

Please check with your doctor/s about this method.