Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
hi everyone,
My last post wasn't so happy. I think we all know what a dark place this condition puts us in sometimes. Right now I feel terrible. Everything hurts and all I want to do is lay down, drink tea and watch movies. One thing I realized about myself is that it's very easy for me to fall into a dark place when I have nothing to do. I'm a university student who is currently on summer vacation. I don't have to work because my parents help me a lot since they understand how hard juggling school amongst other things are. They help me out really whenever I need so I'm extremely thankful they are in a position to do so.
So i've been on summer break at their house until I find another apartment and I realize how much time I have on my hands. Then I realized how sad and depressed I've been lately. I came to the conclusion that I need to always be doing something, because then I don't have time to sulk for very long and I don't get stuck in my own thoughts. When i was in school and I was feeling bad, I'd give myself like ten minutes to cry about it before I forced myself to get back to work. Because when you're that busy, there's no time for depression.
So I think what's best for me is to get a schedule for the rest of the summer. Maybe like
7-9am gym time
930 - 10 breakfast (juicing)
shower
etc....
I may even try this whole meditation thing before the gym everyday and see how that works for me (do any of you meditate? how does it help?)
I think putting myself on a strict schedule like this might really help me out. I'm going to fill my time with things I love, like screenwriting (film/TV production is my major) as well as graphic design (which I love to do on the side) and photography. And get a lot of outdoor time, like the california beaches and going to museums and things like that. This way, I'm putting a lot of time into myself in a way that is constantly building me up rather than tearing myself down everyday. What do you guys think? What do you do to stay busy/positive each day? Please let me know!
(p.s, I think I want a puppy haha)
- e
My last post wasn't so happy. I think we all know what a dark place this condition puts us in sometimes. Right now I feel terrible. Everything hurts and all I want to do is lay down, drink tea and watch movies. One thing I realized about myself is that it's very easy for me to fall into a dark place when I have nothing to do. I'm a university student who is currently on summer vacation. I don't have to work because my parents help me a lot since they understand how hard juggling school amongst other things are. They help me out really whenever I need so I'm extremely thankful they are in a position to do so.
So i've been on summer break at their house until I find another apartment and I realize how much time I have on my hands. Then I realized how sad and depressed I've been lately. I came to the conclusion that I need to always be doing something, because then I don't have time to sulk for very long and I don't get stuck in my own thoughts. When i was in school and I was feeling bad, I'd give myself like ten minutes to cry about it before I forced myself to get back to work. Because when you're that busy, there's no time for depression.
So I think what's best for me is to get a schedule for the rest of the summer. Maybe like
7-9am gym time
930 - 10 breakfast (juicing)
shower
etc....
I may even try this whole meditation thing before the gym everyday and see how that works for me (do any of you meditate? how does it help?)
I think putting myself on a strict schedule like this might really help me out. I'm going to fill my time with things I love, like screenwriting (film/TV production is my major) as well as graphic design (which I love to do on the side) and photography. And get a lot of outdoor time, like the california beaches and going to museums and things like that. This way, I'm putting a lot of time into myself in a way that is constantly building me up rather than tearing myself down everyday. What do you guys think? What do you do to stay busy/positive each day? Please let me know!
(p.s, I think I want a puppy haha)
- e
I never miss a chance to travel every year, but always stay close to home no more than 2 hours of traveling time, as I find it difficult to sit or walk too much.
I don't work so do online volunteer work with chemoangels--i write to those who are going through chemo treatments, making them feel better makes me feel better about my own problems. I also grant wishes on Wish upon A Hero. It's my life.
I may walk like a duck, but if other people can be out there, moving around, so can I. I also go to the gym a few times a week, can't do much but do enjoy the pool classes. :)
Oh...and I want a Puppy too. (A little Yorkie!)
Respectful, I'm trying really hard to get my life back. I'm too young to be feeling this old and in pain, haha. I love swimming, but I'm always afraid to do so, it doesn't seem like a good idea with open wounds? So I haven't swam in years unfortunately.
I'm trying to think more positively. I really believe that life and death is in the power of the tongue. And the more I keep speaking about how ill I am, the more I feel I'm like putting a spell on myself. I need to be speaking life into my body. Declaring things such as "I am healthy, I am whole, I am happy"!
You don't have to stay out of the water!