Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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The pain is bad

matthewmccorkle
matthewmccorkle
Hi everybody i want to say to all of u that i have HS armpits,groin ,buttocks area.and the pain in my buttocks is just bad and i can,t take it anymore and the pain.is just crazy and i hate it sometime i just have to cry.because its so bad and i can,t take it in my buttocks i take oxocodeing to make me go to sleep at night pain hurts then.
ShannonA
ShannonA
Gentle hugs to you matthew, hope that you get to feeling better soon! We all know all too well what you are talking about hon.
I'm glad you at least have something for the pain. It is a wonder, really if you think about it, how many of us are capable of still going, some to a lesser extent of course depending upon obvious particulars, and trying to keep up with family and friends.
Does your doctor have you on any antibiotics or anything like that? Hope you get well soon.
Colleenie
Colleenie
Dear Matthew,
I am so sorry that you are STILL in so much pain. My heart breaks for you. Please don't give up on yourself. You are so young to have to be going through this. I will pray for you, if that gives you any comfort. I think God hears us sometimes. I hope so anyway.
xoxox
respectful
respectful
I know how you feel. I can't handle the pain in my buttocks unless I am on 500 mg of KEFLEX. That is the only antibiotic that ends my pain. Perhaps you can mention that to your doctor....
deleted_user
deleted_user
Matthew, as I read your post I get a lump in my throat. I understand your pain and feelings. I have mine in the same areas and I do a sit down tech job & my butt hurts SOOOO bad! I pray that God relieve you of some of your pain. I know the feeling of not being able to take it anymore, but you can do it just keep your faitb strong! Take care
deleted_user
deleted_user
Awww I'm so sorry. I wish there was something we could for to clear you right up. Have you had a consultation for surgery yet? It really sounds like you need to do the surgery and that will really help you alot.
I need to do it on my butt too but it's only on the tailbone area. The whole thing I get a massive one there that when it goes it oozes for months.
Total recommend praying for healing. Have you tried going on Tumeric yet? I've heard it will stop NEW outbreaks altogher. It's a spice. You can buy it over the counter. It's at Walmart and is inexpensive.
Lastly Make sure you are using your heating pad about 1 hour a day that will REALLY help clear you up!