Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
krhoyt
Hello,
I am new to this and I was diagnosed with HS about 10 years ago and have been ignoring it pretty much the entire time until now. I was recommended by my dermatologist to see a plastic surgeon for surgery which really scares me. Has anyone gotte the surgery? If so, how was it for you? Thank you in advanced.
Bmars
Hi I have had surgery done about 4 years ago and it went well, hurt like hell but kinda worked. I have had HS for 20 plus years and i am just finishing my book about H.S as i write this. we can talk about that later so about your surgery is it laser or conventional scalpel because I have had both, the laser worked out well as the conventional came right back. My advice is this; if you have laser you can be confident it should work, scalpel has never worked out for me and everytime they knock you out it pretty much takes years off your life so demand what works. I have a good amount of experience with this disease from hell. So feel free to contact me I will help all i can for you.
cromba
Hopefully you have so far avoided surgery. I only has about a 30% success rate and I understand it is very painful. This is an autoimmune disorder. I have had it for 14 years, but I finally found some help. Get this book at Amazon or Barnes and Noble: The hidden plague by tara grant. It pretty much saved my life and I have never felt better. No more useless medications, creams etc.
Wisdumb
Some research done on legion extraction via surgery has shown that many cases have a high recurrence rate, specificly arond suture lines, grafts etc. The medical community has been focused on research that shows it as an auto immune disease, with many suffering from other forms of auto immune diseases such as psoriasis, remathiod arthritis and lupus. My doctors have always tried to steer me clear of having surgery, simply because of the fact that as we grow older, it progresses. Hope this helps!
JustSomeGirl
I've had two major excisions in the left axilla and sacrum (that's the armpit and tailbone for all you normal folks). Both procedures were amazingly helpful and I've not had any recurring inflammation. A word of advice though, be prepared for the healing process. The area on my sacrum was 19 cm wide and almost 2 in deep. It required packing with gauze that needed to be changed twice daily. The most painful part is the removal of the gauze, as by that point, the area has mostly dried up and the whole purpose is that the removal of the gauze will clean the inside of the wound through debridement (Google it). The tailbone was a solid 10-12 weeks of healing and required a visiting nurse for dressing changes. The armpit was about 8 weeks healing, but again, was such a large area. We joke and say it looked like I got bitten by a shark. The most exciting thing is to witness the growth of new, unaffected, healthy skin! I've not had any issues in the areas where the excisions were and am preparing to have my right armpit excised next. I may look like a stitched together rag doll when all is said and done, but I'll take scars over this ANY day!
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