Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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Indigo 10/18/2019

Based on my research HS appears to be caused by one or more factors: 1. sweat glands, 2. bacteria, 3. hormones, 4. poor immune system, 5. allergies. However, due to lack of research, these conditions may have been put under the same umbrella of HS.

Here are some possible treatment options to research and consider according to your underlying cause:

SWEAT GLANDS- laser therapy (early stages), chemical peels, botox injections (prevents sweating)

BACTERIA-

FMT (FECAL MICRIBIOTA TREATMENT) Google the taymount clinic UK and or DIY FTM. It sounds disgusting but can help restore a healthy gut biome and is also effective for those who are experiencing diarrhiea from antibiotic overuse and antibiotic resistance.

PHAGE THERAPY (search Susanne hidradentis and phage therapy on youtube along with other general articles such as HS remission: bacteriophage therapy and intermittent fasting by Inna Kay etc

-antibiotic therapy

- Chemical peels

- topical medical Manuka honey in combination with topical antibiotics (research shows that Manuka honey can even revert antibiotic resistance)

HORMONES- contraceptive pill or sterilisation

POOR IMMUNE SYSTEM- Elimination diet, probiotics, supliments etc

-Exercise

-FMT (FECAL MICRIBIOTA THERAPY- Please see above

Phage therapy- please see above

ALLERGIES-palio elimination diiet,

-FMT (GOOGLE SEARCH FMT AND ALLERGY TREATMENT and taymount clinic)

let's get a dialogue going on possible treatments. Let me know your thoughts and experiences. The more people come forward, the more chance we have of finding a cure!

Wishing you all the best!

Adub 12/15/2019

I’ve had HS for the last 20 years buttocks, waist, inner thighs and armpits are my most affected areas. This is what I’ve learned over the years. When I was younger my HS wasn’t that bad I stopped smoking for a about a year and had no outbreaks. I started smoking again and the flare ups started again. As the years went on I was diagnosed with type 2 diabetes, and my HS got way worse. I could have up to 20 boils, and the new ones were popping up faster then the old ones could heal. It was a lot to deal with. I started to apply hydrogen peroxide to body before showering, and using acne wash for soap. I used both benzoyl peroxide and salyctic acid. I found the salyctic acid works better. After showering I would use an anti fungal foot spray on all my problem areas. I would atleast shower once a day using this technique, but most days I would shower twice. I found using this technique I could control outbreaks, and if I did get a boil it would be a really small one. However as soon as I stopped using the washing technique I would immediately flare up. I decided to do something about my diabetes and started doing the keto diet. While on keto I had no flare ups. However keto is a tough diet to stay on. As soon as I stopped keto it flared up again. I am no expert on HS but from my personal experience quitting smoking helps, hydrogen peroxide, acne wash, and anti-fungal foot spray helps, and the keto diet helps

Sabesque 12/15/2019

I've had HS for about 12 years and have seen a dramatic reduction in cysts since cutting out dairy from my diet. I eat mostly a plant based diet and only occasionally eat cheese/butter. However, I usually get a flare up after eating dairy products. This seems to work for me as I want to avoid taking medicine like I have before (doxycycline, accutane, etc). Hope this helps!

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